The trouble with CYPS

Another CYPS appointment; drive over 11 miles to school to collect Lily, drive 11 miles straight back to the clinic where the session is held. Sit in a waiting room where Heart FM is playing at full blast, in case Sarah, the therapist decides to involve me in the session. The chairs are ridiculously uncomfortable, the inane shouty DJ is giving me a headache and there’s nowhere to get a cup of tea. I wait for half an hour, trying to use the time to answer emails, before I’m summoned into the room. Sarah begins telling me about how she’s been learning about Lily’s interests and would I like to hear about what she’s been doing on the computer? I bite my tongue before I can point out that I live with Lily, that the computer is in the living room and therefore I get to see and hear what Lily is doing on the computer. Every. Single. Day.

Sarah tells me what Lily has been doing on the computer and asks me for my reaction. Lily’s computer use is highly problematic for us as a family; she becomes obsessive and addictive while on it, and entirely disregards all of the rules and agreements that we’ve made about it, namely that she needs to have done her homework, revision and any outstanding chores before using the computer. Time and again I’ve had to drag myself out of bed to tell her to get off the computer and go to bed, even after midnight. While gaming online, she yells, screams and swears at the top of her voice no matter how many times I intervene and tell her not to. If I try to turn the computer off, she physically fights me to stop me – the only thing I can do is then confiscate the entire thing when she’s at school. Rather than do what it takes to get the computer back – chores and homework (and by chores I literally mean one small task per day) – she then resorts to aggression or emotional blackmail such as threatening to kill herself if she doesn’t get it back. She switches it on as soon as she gets back from school, or first thing in the morning if there’s no school, and will remain on it all day and late into the night. If Ivy needs to use the computer for homework, there will be yet another fight. Lily will promise anything to get the computer/internet back when it’s in Time Out, but will never stick to those agreements. She has posted videos on YouTube in which she’s ranting, swearing and being aggressive, and refuses to take them down, has posted one in which she was improvising a flamethrower in Simon’s kitchen, and I narrowly managed to prevent her posting a video in which she cried hysterically while claiming she’d been diagnosed as a psychopath. She simply has no concept of the damage that she could cause for herself or others, that dodgy online stuff has a nasty habit of reappearing in the future, and so I’ve banned her from “vlogging” – yet another rule that she entirely disregards.

Sarah is aware that I’m broken, exhausted and struggling. She’s aware that computer use is a contentious issue. Yet she seems displeased when I respond through gritted teeth that while it’s great that Lily has for example made some music on the computer, she shouldn’t be playing on it unless she’s done her homework and her chores. She sends Lily out of the room and essentially tells me off, albeit couched in friendly therapist speak, for not managing to be enthusiastic about Lily’s computer use. That I’m too critical, I’m not affectionate enough, that she has a duty of care towards Lily and needs to ensure Lily is not subjected to emotional harm. Really? I think, Where the hell where you when Simon was subjecting the three of us to severe emotional and psychological abuse? How come all the evidence I’ve gathered, including the audio recording that Lily made of him being hugely abusive and attempting to alienate them from me has been entirely ignored by the authorities? Seriously, you’re going to insinuate that I’m being emotionally abusive because I can’t fake a happy face about Lily breaking the computer rules on a daily basis? Sarah goes on to point out that last week’s session was about addressing my needs and we’re now getting support from Early Help. Um – do you mean the session where I was kept waiting for over half an hour, feeling worthless because I’m evidently not important enough for anyone to speak to, and triggered because that’s the kind of thing Simon used to do? Also no – I’ve had a referral to Early Help. I’ve not had any actual help yet. So basically, nothing has changed since we first walked in to the clinic a month ago, yet Sarah is acting as if I’ve now had all the support in the world and the issue is that I’m just not patient and positive enough around Lily. Sarah also appears to have forgotten that she brokered a deal with Lily about her computer use during the last session, one which Lily has entirely disregarded; evidently Sarah is not going to hold Lily accountable for this, but rather is reinforcing Lily’s poor behavioural choices, making me look like the Bad Guy for insisting that Lily follows the rules.

Lily was referred by the pastoral team at her school as an emergency case. At the time she’d punched other kids at school, was acting aggressively and threatening members of staff, and was disruptive in class, claiming she could see people who weren’t there, or demons climbing up the walls. She had been self harming, and her behaviour was becoming more and more bizarre as she imitated characters from her favourite anime, literally living out her day as a fictional character. Also – and the part which seems to be continually overlooked – she had threatened me, firstly with a heavy stone pestle and then with the kitchen knife. What I find most disturbing – as well as the knife incident – is that she was deliberately faking having psychotic episodes. She didn’t really see people or demons, she was acting out. The self harm was carefully controlled, scratching rather than cutting, and displayed to others at school. In addition, the only time she ever shows me affection is when she wants something. Every time. If she starts cuddling up to me, I can feel myself getting tense because I know she’s about to demand something from me. Sarah was emphasising that Lily was a child with diagnoses, but then again she had Lily down as being 14. Lily will be 16 in three months. If she continues punching people and being aggressive, she’ll get arrested. If she continues acting out like a crazy person, she’ll be sectioned. It doesn’t matter to the police that she’s deeply immature or autistic, if she’s behaving like a menace to the public then they’ll take action against her – and as she will continue to be aggressive towards the arresting officer, the situation will spiral out of control. I suppose I’m lucky that we don’t have guns. In America, Lily would have been singled out as a potential school shooter. I’m not trying to make some kind of sick joke – she would literally be on the “concern” list, invited in for regular chats with the school counsellor as her behaviour has been so extreme.

If Lily was my partner, people would be urging me to leave her; the pathological lying, the aggression, the total lack of regard for other people. But she’s my child, therefore I’m expected to not even complain. The reality is that I need respite, it’s a lot easier to manage her behaviour if I’ve been able to take a break from caring for her 24/7. When you’re having to fight the same battles day in day out – over issues as simple as Lily cleaning her teeth, or taking a bath, never mind homework and computer use, it becomes exhausting and demoralising. When you’re dealing with aggression day in day out, it wears you down and erodes your self confidence. If I got a job at a specialist school for autistic children, I’d be given training and support. As a parent it’s a case of just getting on with it – or the offer of yet another parenting course in which you’re told to be positive and enthusiastic, or even to just give the kid exactly what they want to keep them quiet. Broke the computer again? Oh well, let’s buy you another one. I wish I was joking, but that’s what the advice on Challenging Behaviour workshops boils down to. Nobody ever works one-to-one with your child on a sustainable therapeutic basis; instead the onus is always put back on the parent; untrained, exhausted and demoralised, to somehow wave a magic wand and make it all better.

We should have had a referral to CYPS about seven years ago. It should have been automatic when Lily was referred to the Tavistock with gender dysphoria, but we were knocked back. We’ve had one six week block of art therapy for her about five years ago when the service was still CAMHS and Lily was newly diagnosed with ADHD, but several rebuttals since then. I’m aware that children’s services are woefully overstretched and underfunded, but I refuse to say that we’re “lucky” to have had the limited support that we’ve had. It’s a disgrace. Even before she’d met Lily, Sarah was hinting that perhaps talking therapy might not be appropriate and seeming very much like she wanted to take us off her case list before she’d even started, the easiest way of clearing out the waiting list. The trouble is there is nothing else. If CYPS don’t help us, it’s the end of the road, unless I pay for private therapy. Yet it’s clear that at the moment, I need therapy myself – if I go under, both of the kids go under, and I can’t pay for all of us at once. We might only get 8 sessions with CYPS, and Sarah is going to be moving away halfway through those, leaving Lily with someone else – my next fear is that we’ll get no further than essentially having two rounds of getting to know you sessions with two different therapists, and no actual progress will be made. In the meantime I’ve now had four occasions of leaving the CYPS clinic feeling utterly demoralised to the point of suicide. I’ve had to sit on a park bench, sobbing in public until I could calm down enough to drive us home, knowing that if I had a knife in my bag I’d be using it on my wrists. Each time, I’m left fighting to survive, building myself back up before trying to repair the additional damage that has been done to the relationship between Lily and me.

A recent documentary showed how nationwide CYPS is underfunded and overstretched, and that children and young people are repeatedly being turned away while their problems grow worse. As a parent it’s heartbreaking and terrifying to watch your child’s condition worsen week by week while not being able to get them the help they need – unless of course you can afford to pay for private treatment. Frustration and anger build as GPs refuse to even attempt to refer you to further services. Again and again you’re told that there’s nothing they can do, or that your child’s problems aren’t serious enough, while you watch your child slipping further down, further away, losing them a bit more each day. Your stress and anxiety build, until it reaches the point where you need help too, and your own ability to cope and support them diminishes. And because the “support,” if and when it arrives, has been so hard-won, you close your eyes and pretend that it’s fine, it’s making a difference, even when it’s not. You don’t dare complain for fear of losing everything. I’ve met countless families where this is the nightmare reality. Our kids are stressed and sick and left to get on with it. Our autistic kids are entirely ignored and unsupported. Meanwhile no one is taxing the rich or the corporations and the luxury goods market is at an all time high. A local aristocrat featured in a documentary about the wealth divide, shrugging her shoulders that “poor” people were just jealous of her lifestyle and needed to work harder (she herself had married into a titled family.) No. The system is stacked against us, social mobility becoming increasingly harder in a world of Zero Hours contracts, huge university fees, student loans, eye-wateringly expensive property prices and precious little job security, not to mention the nightmare that Universal Credit has been. But we’re not jealous of Cartier watches and polo ponies. We’re angry that our kids are being left to rot so that the rich can feel even richer.

On World Mental Health Day

Crashing, over and over. Fighting to pick myself up, keep going, trying to make things better. Getting knocked back over again, each time the fall coming harder, the pain deeper, the resilience less. A good weekend is followed by a clash with Lily’s therapist, who alarmingly manages to actually make things worse. Over the past two months, this woman has left me feeling suicidal no less than four times, steamrollering me with her procedures and rules and now forcing me into the role of Bad Cop with Lily while she gets to play the Good Fairy; not even the Good Cop. Another post for another time, but I was left curled up on my bed, sobbing, unable to function. Not able to leave the house to drive into town to pick the kids up off the school bus, not able to cook dinner, locking myself in my room because I couldn’t face dealing with the kids and I didn’t want them to see me in that state either. Literally wanting to die and feeling trapped because suicide isn’t an option when you’re a single parent. Fighting the urge to gulp down most of a bottle of whisky as the next best option. Discovering a whole new level below rock bottom, one in which suicidal is something to aim for, something better than you’re currently feeling. There is nothing of me left, I died a long time ago. This empty shell should have crumbled into dust, but is forced to keep moving so that the kids have food, clothes and a ride to school. The small voice in my head becoming a scream I can’t go on like this any more, day after day after day I can’t go on, but with no way of making it stop.

Casual plans had been put in place to head north last weekend to visit my parents and see the final outing of Royal de Luxe’s giants in Liverpool. Exhausted, I realised there was no way I could drive 150 miles on Friday evening after school, spend a hectic two days giant-watching and then drive 150 miles home again on Sunday evening. I figured we’d head up on Thursday evening, then by Wednesday night, broken, realised that it was still too much to manage. I wasn’t coping, was barely functioning. So we took Thursday off school as well, packed a bag each and set out on the journey North, having left an early message on the school’s answering machine that Ivy and Lily were both ill. In the end, we took not only the Thursday and Friday but also the Monday off school, knowing that after a full-on day watching the finale in a massive crowd, I was too tired to drive home safely (due to roadworks as the motorways are upgraded, the three hour journey takes five hours or more.) Three illicit days off school, two struggling kids, one mother who was an emotional wreck. I told school that the kids were ill, intending to use the excuse of food poisoning if questioned further, developing this into full blown Noro virus if pushed – knowing that school were unlikely to want us back until fully recovered if this were the case. Because what am I supposed to say? Sorry, I’m feeling suicidal so my kids aren’t coming in for the next few days as I need to be with my family, I don’t feel safe on my own.

To Liverpool then, for 3 days of Giant-watching. Trains, buses, huge crowds. Wishing that my Dad was more inclined to take tea-and-cake breaks, or that chairs had been provided along the route. No matter though. The spectacle was enough, the magic of a mass of people caught up in a game of make-believe. I’d seen pictures of the Diver and Little Girl from years before and wished I’d been able to see it then. This time around, I was determined that we’d catch it – and now having discovered that this is the last outing of the Giants, I’m so glad that we did. It’s yet another example of an extra-curricular activity that the kids will remember for the rest of their lives, whereas it’s unlikely they’d remember what they did in school that day. We were all captivated as the huge puppets moved, walked, and danced along the streets, while red frockcoat-wearing Lilliputians dangled from ropes, climbed alarmingly tall frameworks, pulled, hauled and best of all hurled themselves from moving trucks to make the giants move, all to the music blasting out of speakers and the cheers of the crowd.

Having worked in theatre, I’m well-versed in criticism, in development during which an idea is thrashed about and re-worked to the point where it no longer resembles itself, of too many voices demanding that the piece needs to be more this, less that, must say a different message… and yet I’ve known that often the audience doesn’t make the same demands. Or at least the audience – if it were composed of ordinary people rather than the theatre in-crowd – isn’t necessarily making the same demands as those within the industry claiming to speak on their behalf. That sometimes people want to be heard, want to see their lives reflected back to them in a way that gives them grace and dignity, and above all, hope. Most people are happy with a simple story told well rather than a piece that defies convention or experiments with form and style. With what we saw of the giants this time around, I couldn’t pick up on any notion of a story that was unfolding in front of me. It didn’t matter though. What we watched was a celebration, a spectacle. Hundreds of people had poured countless hours of effort into planning, building, rehearsing, and now performing- from the frock-coated Lilliputians tasked with operating the giant puppets, to the volunteers walking alongside them to maintain a safety cordon, to the transport workers ensuring that people could travel there and back as swiftly as possible, to the guys sweeping up the litter afterwards – all ultimately tasked with a single aim; to bring delight. I could infer any meaning I wanted about Liverpool’s Dream, from the history of migration from the city, people travelling to the New World chasing their dreams of a better life, to the tragic history of slavery and a city built on the backs of the exploited. Perhaps it sounds crass to say it didn’t matter. What mattered was bringing people together to watch it, to share in a communal experience of childlike wonder, of awe, of joy.

I imagine that there’s people I’ve worked with previously who would turn their noses up at the naivety of the whole thing, who would claim it had nothing to offer artistically, that it was mere spectacle. I think perhaps they don’t understand the meaning of the word spectacle – like watching a grand fireworks display which may not have anything to say about white working class reaction to Brexit, but which fills you with a delicious joy for the wonders of human existence. This is something we need more of, these moments of connection, of awe, of delight. Of hope, rather than yet another young woman brutally murdered in yet another crime drama, or witless reality show, or on-point, right-on stylistically innovative but depressing as fuck piece of new writing. Under Tory cuts, arts budgets have been slashed nationwide – it’s hard to justify spending on the arts when there’s no money for meals on wheels or road maintenance. Yet Royal de Luxe have been instrumental in regenerating the city of Nantes, their home base, not only culturally but economically. Liverpool is one of the few cities that insists on investing in the arts, the number of visitors last weekend proving that it makes economic sense. The Golden Age of cinema occurred alongside the Great Depression. Art Saves, as the T-shirt has it; financially, emotionally, intellectually and also spiritually. When you run out of hope, there’s nothing left to live for. I had reached that point last week. And although the weekend was tiring due to the long hours of standing, waiting and walking, it left me feeling renewed and refreshed in a way that I haven’t felt for years. The Giants ultimately brought me the gift I most needed; hope.