The trouble with CYPS

Another CYPS appointment; drive over 11 miles to school to collect Lily, drive 11 miles straight back to the clinic where the session is held. Sit in a waiting room where Heart FM is playing at full blast, in case Sarah, the therapist decides to involve me in the session. The chairs are ridiculously uncomfortable, the inane shouty DJ is giving me a headache and there’s nowhere to get a cup of tea. I wait for half an hour, trying to use the time to answer emails, before I’m summoned into the room. Sarah begins telling me about how she’s been learning about Lily’s interests and would I like to hear about what she’s been doing on the computer? I bite my tongue before I can point out that I live with Lily, that the computer is in the living room and therefore I get to see and hear what Lily is doing on the computer. Every. Single. Day.

Sarah tells me what Lily has been doing on the computer and asks me for my reaction. Lily’s computer use is highly problematic for us as a family; she becomes obsessive and addictive while on it, and entirely disregards all of the rules and agreements that we’ve made about it, namely that she needs to have done her homework, revision and any outstanding chores before using the computer. Time and again I’ve had to drag myself out of bed to tell her to get off the computer and go to bed, even after midnight. While gaming online, she yells, screams and swears at the top of her voice no matter how many times I intervene and tell her not to. If I try to turn the computer off, she physically fights me to stop me – the only thing I can do is then confiscate the entire thing when she’s at school. Rather than do what it takes to get the computer back – chores and homework (and by chores I literally mean one small task per day) – she then resorts to aggression or emotional blackmail such as threatening to kill herself if she doesn’t get it back. She switches it on as soon as she gets back from school, or first thing in the morning if there’s no school, and will remain on it all day and late into the night. If Ivy needs to use the computer for homework, there will be yet another fight. Lily will promise anything to get the computer/internet back when it’s in Time Out, but will never stick to those agreements. She has posted videos on YouTube in which she’s ranting, swearing and being aggressive, and refuses to take them down, has posted one in which she was improvising a flamethrower in Simon’s kitchen, and I narrowly managed to prevent her posting a video in which she cried hysterically while claiming she’d been diagnosed as a psychopath. She simply has no concept of the damage that she could cause for herself or others, that dodgy online stuff has a nasty habit of reappearing in the future, and so I’ve banned her from “vlogging” – yet another rule that she entirely disregards.

Sarah is aware that I’m broken, exhausted and struggling. She’s aware that computer use is a contentious issue. Yet she seems displeased when I respond through gritted teeth that while it’s great that Lily has for example made some music on the computer, she shouldn’t be playing on it unless she’s done her homework and her chores. She sends Lily out of the room and essentially tells me off, albeit couched in friendly therapist speak, for not managing to be enthusiastic about Lily’s computer use. That I’m too critical, I’m not affectionate enough, that she has a duty of care towards Lily and needs to ensure Lily is not subjected to emotional harm. Really? I think, Where the hell where you when Simon was subjecting the three of us to severe emotional and psychological abuse? How come all the evidence I’ve gathered, including the audio recording that Lily made of him being hugely abusive and attempting to alienate them from me has been entirely ignored by the authorities? Seriously, you’re going to insinuate that I’m being emotionally abusive because I can’t fake a happy face about Lily breaking the computer rules on a daily basis? Sarah goes on to point out that last week’s session was about addressing my needs and we’re now getting support from Early Help. Um – do you mean the session where I was kept waiting for over half an hour, feeling worthless because I’m evidently not important enough for anyone to speak to, and triggered because that’s the kind of thing Simon used to do? Also no – I’ve had a referral to Early Help. I’ve not had any actual help yet. So basically, nothing has changed since we first walked in to the clinic a month ago, yet Sarah is acting as if I’ve now had all the support in the world and the issue is that I’m just not patient and positive enough around Lily. Sarah also appears to have forgotten that she brokered a deal with Lily about her computer use during the last session, one which Lily has entirely disregarded; evidently Sarah is not going to hold Lily accountable for this, but rather is reinforcing Lily’s poor behavioural choices, making me look like the Bad Guy for insisting that Lily follows the rules.

Lily was referred by the pastoral team at her school as an emergency case. At the time she’d punched other kids at school, was acting aggressively and threatening members of staff, and was disruptive in class, claiming she could see people who weren’t there, or demons climbing up the walls. She had been self harming, and her behaviour was becoming more and more bizarre as she imitated characters from her favourite anime, literally living out her day as a fictional character. Also – and the part which seems to be continually overlooked – she had threatened me, firstly with a heavy stone pestle and then with the kitchen knife. What I find most disturbing – as well as the knife incident – is that she was deliberately faking having psychotic episodes. She didn’t really see people or demons, she was acting out. The self harm was carefully controlled, scratching rather than cutting, and displayed to others at school. In addition, the only time she ever shows me affection is when she wants something. Every time. If she starts cuddling up to me, I can feel myself getting tense because I know she’s about to demand something from me. Sarah was emphasising that Lily was a child with diagnoses, but then again she had Lily down as being 14. Lily will be 16 in three months. If she continues punching people and being aggressive, she’ll get arrested. If she continues acting out like a crazy person, she’ll be sectioned. It doesn’t matter to the police that she’s deeply immature or autistic, if she’s behaving like a menace to the public then they’ll take action against her – and as she will continue to be aggressive towards the arresting officer, the situation will spiral out of control. I suppose I’m lucky that we don’t have guns. In America, Lily would have been singled out as a potential school shooter. I’m not trying to make some kind of sick joke – she would literally be on the “concern” list, invited in for regular chats with the school counsellor as her behaviour has been so extreme.

If Lily was my partner, people would be urging me to leave her; the pathological lying, the aggression, the total lack of regard for other people. But she’s my child, therefore I’m expected to not even complain. The reality is that I need respite, it’s a lot easier to manage her behaviour if I’ve been able to take a break from caring for her 24/7. When you’re having to fight the same battles day in day out – over issues as simple as Lily cleaning her teeth, or taking a bath, never mind homework and computer use, it becomes exhausting and demoralising. When you’re dealing with aggression day in day out, it wears you down and erodes your self confidence. If I got a job at a specialist school for autistic children, I’d be given training and support. As a parent it’s a case of just getting on with it – or the offer of yet another parenting course in which you’re told to be positive and enthusiastic, or even to just give the kid exactly what they want to keep them quiet. Broke the computer again? Oh well, let’s buy you another one. I wish I was joking, but that’s what the advice on Challenging Behaviour workshops boils down to. Nobody ever works one-to-one with your child on a sustainable therapeutic basis; instead the onus is always put back on the parent; untrained, exhausted and demoralised, to somehow wave a magic wand and make it all better.

We should have had a referral to CYPS about seven years ago. It should have been automatic when Lily was referred to the Tavistock with gender dysphoria, but we were knocked back. We’ve had one six week block of art therapy for her about five years ago when the service was still CAMHS and Lily was newly diagnosed with ADHD, but several rebuttals since then. I’m aware that children’s services are woefully overstretched and underfunded, but I refuse to say that we’re “lucky” to have had the limited support that we’ve had. It’s a disgrace. Even before she’d met Lily, Sarah was hinting that perhaps talking therapy might not be appropriate and seeming very much like she wanted to take us off her case list before she’d even started, the easiest way of clearing out the waiting list. The trouble is there is nothing else. If CYPS don’t help us, it’s the end of the road, unless I pay for private therapy. Yet it’s clear that at the moment, I need therapy myself – if I go under, both of the kids go under, and I can’t pay for all of us at once. We might only get 8 sessions with CYPS, and Sarah is going to be moving away halfway through those, leaving Lily with someone else – my next fear is that we’ll get no further than essentially having two rounds of getting to know you sessions with two different therapists, and no actual progress will be made. In the meantime I’ve now had four occasions of leaving the CYPS clinic feeling utterly demoralised to the point of suicide. I’ve had to sit on a park bench, sobbing in public until I could calm down enough to drive us home, knowing that if I had a knife in my bag I’d be using it on my wrists. Each time, I’m left fighting to survive, building myself back up before trying to repair the additional damage that has been done to the relationship between Lily and me.

A recent documentary showed how nationwide CYPS is underfunded and overstretched, and that children and young people are repeatedly being turned away while their problems grow worse. As a parent it’s heartbreaking and terrifying to watch your child’s condition worsen week by week while not being able to get them the help they need – unless of course you can afford to pay for private treatment. Frustration and anger build as GPs refuse to even attempt to refer you to further services. Again and again you’re told that there’s nothing they can do, or that your child’s problems aren’t serious enough, while you watch your child slipping further down, further away, losing them a bit more each day. Your stress and anxiety build, until it reaches the point where you need help too, and your own ability to cope and support them diminishes. And because the “support,” if and when it arrives, has been so hard-won, you close your eyes and pretend that it’s fine, it’s making a difference, even when it’s not. You don’t dare complain for fear of losing everything. I’ve met countless families where this is the nightmare reality. Our kids are stressed and sick and left to get on with it. Our autistic kids are entirely ignored and unsupported. Meanwhile no one is taxing the rich or the corporations and the luxury goods market is at an all time high. A local aristocrat featured in a documentary about the wealth divide, shrugging her shoulders that “poor” people were just jealous of her lifestyle and needed to work harder (she herself had married into a titled family.) No. The system is stacked against us, social mobility becoming increasingly harder in a world of Zero Hours contracts, huge university fees, student loans, eye-wateringly expensive property prices and precious little job security, not to mention the nightmare that Universal Credit has been. But we’re not jealous of Cartier watches and polo ponies. We’re angry that our kids are being left to rot so that the rich can feel even richer.

On World Mental Health Day

Crashing, over and over. Fighting to pick myself up, keep going, trying to make things better. Getting knocked back over again, each time the fall coming harder, the pain deeper, the resilience less. A good weekend is followed by a clash with Lily’s therapist, who alarmingly manages to actually make things worse. Over the past two months, this woman has left me feeling suicidal no less than four times, steamrollering me with her procedures and rules and now forcing me into the role of Bad Cop with Lily while she gets to play the Good Fairy; not even the Good Cop. Another post for another time, but I was left curled up on my bed, sobbing, unable to function. Not able to leave the house to drive into town to pick the kids up off the school bus, not able to cook dinner, locking myself in my room because I couldn’t face dealing with the kids and I didn’t want them to see me in that state either. Literally wanting to die and feeling trapped because suicide isn’t an option when you’re a single parent. Fighting the urge to gulp down most of a bottle of whisky as the next best option. Discovering a whole new level below rock bottom, one in which suicidal is something to aim for, something better than you’re currently feeling. There is nothing of me left, I died a long time ago. This empty shell should have crumbled into dust, but is forced to keep moving so that the kids have food, clothes and a ride to school. The small voice in my head becoming a scream I can’t go on like this any more, day after day after day I can’t go on, but with no way of making it stop.

Casual plans had been put in place to head north last weekend to visit my parents and see the final outing of Royal de Luxe’s giants in Liverpool. Exhausted, I realised there was no way I could drive 150 miles on Friday evening after school, spend a hectic two days giant-watching and then drive 150 miles home again on Sunday evening. I figured we’d head up on Thursday evening, then by Wednesday night, broken, realised that it was still too much to manage. I wasn’t coping, was barely functioning. So we took Thursday off school as well, packed a bag each and set out on the journey North, having left an early message on the school’s answering machine that Ivy and Lily were both ill. In the end, we took not only the Thursday and Friday but also the Monday off school, knowing that after a full-on day watching the finale in a massive crowd, I was too tired to drive home safely (due to roadworks as the motorways are upgraded, the three hour journey takes five hours or more.) Three illicit days off school, two struggling kids, one mother who was an emotional wreck. I told school that the kids were ill, intending to use the excuse of food poisoning if questioned further, developing this into full blown Noro virus if pushed – knowing that school were unlikely to want us back until fully recovered if this were the case. Because what am I supposed to say? Sorry, I’m feeling suicidal so my kids aren’t coming in for the next few days as I need to be with my family, I don’t feel safe on my own.

To Liverpool then, for 3 days of Giant-watching. Trains, buses, huge crowds. Wishing that my Dad was more inclined to take tea-and-cake breaks, or that chairs had been provided along the route. No matter though. The spectacle was enough, the magic of a mass of people caught up in a game of make-believe. I’d seen pictures of the Diver and Little Girl from years before and wished I’d been able to see it then. This time around, I was determined that we’d catch it – and now having discovered that this is the last outing of the Giants, I’m so glad that we did. It’s yet another example of an extra-curricular activity that the kids will remember for the rest of their lives, whereas it’s unlikely they’d remember what they did in school that day. We were all captivated as the huge puppets moved, walked, and danced along the streets, while red frockcoat-wearing Lilliputians dangled from ropes, climbed alarmingly tall frameworks, pulled, hauled and best of all hurled themselves from moving trucks to make the giants move, all to the music blasting out of speakers and the cheers of the crowd.

Having worked in theatre, I’m well-versed in criticism, in development during which an idea is thrashed about and re-worked to the point where it no longer resembles itself, of too many voices demanding that the piece needs to be more this, less that, must say a different message… and yet I’ve known that often the audience doesn’t make the same demands. Or at least the audience – if it were composed of ordinary people rather than the theatre in-crowd – isn’t necessarily making the same demands as those within the industry claiming to speak on their behalf. That sometimes people want to be heard, want to see their lives reflected back to them in a way that gives them grace and dignity, and above all, hope. Most people are happy with a simple story told well rather than a piece that defies convention or experiments with form and style. With what we saw of the giants this time around, I couldn’t pick up on any notion of a story that was unfolding in front of me. It didn’t matter though. What we watched was a celebration, a spectacle. Hundreds of people had poured countless hours of effort into planning, building, rehearsing, and now performing- from the frock-coated Lilliputians tasked with operating the giant puppets, to the volunteers walking alongside them to maintain a safety cordon, to the transport workers ensuring that people could travel there and back as swiftly as possible, to the guys sweeping up the litter afterwards – all ultimately tasked with a single aim; to bring delight. I could infer any meaning I wanted about Liverpool’s Dream, from the history of migration from the city, people travelling to the New World chasing their dreams of a better life, to the tragic history of slavery and a city built on the backs of the exploited. Perhaps it sounds crass to say it didn’t matter. What mattered was bringing people together to watch it, to share in a communal experience of childlike wonder, of awe, of joy.

I imagine that there’s people I’ve worked with previously who would turn their noses up at the naivety of the whole thing, who would claim it had nothing to offer artistically, that it was mere spectacle. I think perhaps they don’t understand the meaning of the word spectacle – like watching a grand fireworks display which may not have anything to say about white working class reaction to Brexit, but which fills you with a delicious joy for the wonders of human existence. This is something we need more of, these moments of connection, of awe, of delight. Of hope, rather than yet another young woman brutally murdered in yet another crime drama, or witless reality show, or on-point, right-on stylistically innovative but depressing as fuck piece of new writing. Under Tory cuts, arts budgets have been slashed nationwide – it’s hard to justify spending on the arts when there’s no money for meals on wheels or road maintenance. Yet Royal de Luxe have been instrumental in regenerating the city of Nantes, their home base, not only culturally but economically. Liverpool is one of the few cities that insists on investing in the arts, the number of visitors last weekend proving that it makes economic sense. The Golden Age of cinema occurred alongside the Great Depression. Art Saves, as the T-shirt has it; financially, emotionally, intellectually and also spiritually. When you run out of hope, there’s nothing left to live for. I had reached that point last week. And although the weekend was tiring due to the long hours of standing, waiting and walking, it left me feeling renewed and refreshed in a way that I haven’t felt for years. The Giants ultimately brought me the gift I most needed; hope.

Mary Poppins Syndrome

I got sick. Again. This time around it was supposedly just a cold, picked up from my Mum while we were visiting. But while Mum and the kids were under the weather for a few days, I’ve been ill for over a month with no sign of improvement. It’s a measure of how run down I am, I suppose. There simply aren’t any reserves left to fight with. So; long blog break.

In the last couple of weeks we’ve started our appointments with CYPS. So far Lily’s psychologist seems more concerned about me than Lily – at least, there’s the recognition that I’m too exhausted to start implementing new domestic routines to help with Lily’s behaviour. I’ve more than a sneaking suspicion that the Psych believes that everything will be fine if only I could be a bit more patient with Lily, and that a marvellous transformation will occur if I’m able to face every situation with calmness and positivity. There should be a law stating that no one can make that kind of judgement until they’ve lived with Lily for at least a week, and then multiply their stress by a total of fifteen years. Like yesterday, when the kids had agreed to make their own way to the school bus stop so that I could have a lie in, I then had to intervene over the phone as Lily was refusing to give Ivy her spare bus ticket – Ivy was crying, thinking she’d be left at the bus stop with no way to get to school and yes, Lily was quite happy for that to be the outcome. It wasn’t even 7.30 am, so goodbye lie-in and hello more stress. Still at least the Psych realised that I’m traumatised from the abuse during the divorce, and that the day to day demands that I’m facing are just too much to deal with. When I ran through the stresses I was facing, the psychologist looked at me in horror “But no one could cope with all that,” she told me.

Yes, I know, I wanted to scream. Here I am, not coping. There’s talk of what support will be put into place, referral to this and that, but I know better than to hold my breath. Too many times we’ve been promised support and none has arrived, so I’ll believe it when I see it. Either the support doesn’t exist, has sadly just been de-funded, the people delivering it are too flaky to make it consistent and sustainable, or the support on offer isn’t the support you actually need. Frankly, I want someone to look after the kids for a week while I get sent on an all-inclusive holiday – that’s the kind of rest I need. Or for someone to come round and cook dinner, wash up and hoover for a couple of weeks. Or drive the kids to school and back for me. Something tells me that these options won’t be included in the support package. When you’re this burned out, what you want is for someone to say Honey, go to bed. I got this.

Being so ill and drained all the time is incredibly frustrating. The pallets I’ve been collecting for months are laying around in the garden, ready to be turned into a shed – if only I had the energy to tackle it. There are plants and bulbs waiting to go into the ground. The decking attached to the garden cabin has rotted, because whoever built it didn’t think to put gutters on it, so that all needs redoing – as well as the roof finishing off properly (People, do not half-tile an already felted roof. Tile it all or don’t bother.) I keep forgetting to tackle the jobs on my list, such as getting home insurance quotes before it automatically renews, calling one lot of builders to see if they’re booked in to fix my shower, and calling the other builder to see about replacing the rotting doors. And oh – the dishes, the endless stack of washing up piling up in the kitchen. So I’m flunking at all the stuff that needs doing, never mind the additional stuff that I want to do on the house and garden. Right now, trying to make sure the kids get to school, we have food in the house and clean plates to eat it off is pretty much all that I’m managing. It sucks.

It sucks doubly because the kids are getting older. Which means two things; one, they should be old enough to help and take responsibility for themselves instead of me having to do everything for them. Two, they won’t be kids for much longer. And there’s the heartbreaking reality – I want them to be able to look back on their childhoods and remember the good times, not the living with an irritable, burned-out exhausted mother in a cluttered home where everything needs fixing. It’s like the bulbs for the garden – if they don’t get planted now, they won’t bloom in Spring. It’s too late. If I don’t start building the shed, the wood I’ve gathered will start to rot. If I can’t somehow pull together our lives and our home into something more harmonious, the kids will have grown up and left. As much as I want to heal and go gently on myself, there’s a timeline here. I can’t press a magical pause button so that the world will wait until I’ve caught up.

It’s Mary Poppins Syndrome, the desire to click my fingers and have everything fall nicely into place, preferably with the aid of a magical helper. Living – the real life we should be living – is deferred until the future when everything is in order. I have the firm belief that if I could just catch up with myself, get to a place where the house is in order, then life will begin to run smoothly and everything will be less overwhelming. I’ll be on top of things, instead of constantly skidding down the avalanche of chores and responsibilities as they pile up on top of me. No doubt life would feel more pleasant if I lived in a home that was always Instagram-ready, but I have no idea of how I’d reach that mystical stage without Ms Poppins’ intervention. The inbox is never empty though – even if by some miracle the house was “done,” it wouldn’t stay that way for long. Sustaining it requires energy, and that’s exactly what I’m lacking.

Clearly my healing and recovery needs to include my physical wellbeing and it’s fast becoming a priority. Doubtless the physical is also affected by the emotional/psychological, and vice versa; it’s hard to be upbeat if you’re constantly ill and exhausted, and stress/trauma will likely create ill health. Healing needs to take place across all areas, and apparently at the same time. So tomorrow I’m heading out to forage some elderberries, if any are still around, and maybe some rosehips too to make an immune-boosting syrup, on top of the supplements that I’ve begun taking. Time too to think about therapy, to start looking for help rather than struggling on alone, to make plans for recovery rather than waiting for Mary Poppins.

Everyday crisis

Sitting in a local cafe, waiting for Ivy to finish therapy and Lily to arrive via the school bus. An overhead light flickers on and off, making crazy strobing shadows on the floor that feel like a horror film. Nearby a mother sits with her clearly autistic son, who having downed his drink now rocks and repeatedly tells her We need to go home now, while she does her best to ignore him, tapping at her phone screen. Finally, her coffee drunk, they get up and leave. I don’t judge her for trying to block him out – I know too well the struggles of having a child on the spectrum and how it wears you down. I do my best to ignore the flickering light, to take this hour and catch up with myself after a demanding week.

Lily’s work experience week did not go well. As usual, she did what she wanted, blanking out or messing around on the tasks that bored her. This time around, my Mum was present for her final day and so Lily wasn’t able to hide behind her usual excuses . Lily still insisted that she worked hard and did her best, meanwhile the office manager apologised to Mum that she wouldn’t be able to provide Lily with a reference as she really hadn’t earned it. After being called in by the manager to check on her because Lily had pinged an elastic band into her eye and was now claiming she couldn’t see and needed to wear an eye patch, it was clear that any plans I’d sketched for the week had to be abandoned; I was on call. By the afternoon of Day 2, the manager sent Lily over to the community theatre group making props in the church hall as it was clear that she was bored and unwilling to do anything else. That had already been scheduled for Day 3 – at which point Emo Lily, with heavily black-smudged eyes and face, argued with the organiser as she wasn’t allowed to play Marilyn Manson as they worked, then took 2 hours for lunch. Day 4, the day Mum was there as a witness, Lily did sod all but roll her eyes and sigh, until the manager told her there wasn’t much point in coming back after lunch. Given the amount of effort that I, Mum and the office manager had gone to in order to set this up for her at the very last minute, it was hellishly frustrating that Lily seemingly put no effort into it. I was just glad that I hadn’t succeeded in setting up anything more challenging – or even anything local – it would be embarrassing to be sitting in this cafe had Lily spent last week messing them around.

Back home and I struggle to teach her to think about others, to take responsibility for her actions and behaviour. I try to get her to understand how disappointing it was that she hadn’t put more effort into work experience when the rest of us had tried so hard for her. Try to get Lily to tell the truth, and to stop making excuses – always the thousand and one reasons why she had to do or not do whatever it was.

I don’t care any more Lily, I just want you to behave.

Perhaps it sounds harsh, knowing that Lily is autistic. Perhaps my expectations are too high. Yet Lily is evidently bright. She can be capable when she wants to be. Most of her behaviour comes down to Pathological Demand Avoidance, needing to be in control at all times and never wrong, an Aspie aversion to transitions and change, plus ADHD-driven inertia, difficulty with both starting and completing tasks. Back in the day she’d merely have been labelled as awkward, lazy, difficult, selfish and defiant. And that’s where it’s hard – she seems capable of so much more, of making better choices, of making more effort. She can do it when she wants to. It’s impossible to know what she’s actually capable of, where the line of autism and ADHD ends and the line of bad behaviour kicks in. Some would argue that it’s all down to her various diagnoses. Others would blame poor behavioural choices. And then there’s the ones who will blame bad parenting.

Yesterday brought a workshop with the local Carers’ group, followed by a meeting with the school SENCO. At the workshop the facilitator dared to say the unsayable; that in many ways, it’s easier with a child who is lower-functioning on the spectrum. This is heresy to some; above all, it’s really not helpful to get competitive over whose child is the easiest/most difficult to manage. Everyone is fighting their own private battles and it’s not possible to weigh up whether it’s worse to have a child who wakes throughout the night, or smears poop, or constantly runs off, or screams abuse at you in the supermarket. Yet she was talking from experience, a son who was more profoundly autistic yet in many ways easier to manage than his sister, whose Aspergers brought constant conflict, tension and verbal abuse on a daily basis. These are the kids no one knows how to handle, the kids on whom no behavioural strategy will work, who can seem bright as a button one minute yet next minute are in meltdown, refusing to cooperate, flying at you in a rage or head butting the wall. Kids who seem capable of getting decent qualifications, of going on to be independent and living their own lives… then have you lying awake with the realisation that they’re not going to make it, they’re just never quite going to manage, that either they will end up getting arrested, sectioned, or spending the rest of their lives still living at home, glued to their computer and arguing about cleaning their teeth or having a shower. Or worse. There is simply no provision for them.

The SENCO meanwhile assured me that Lily was being offered plenty of support in school, but was choosing not to utilise it. That countless times she’d seen Lily ignore the teacher, blank the TA and just refuse to do the work. The same verdict at home, at school, at work experience; Lily only does what she wants to do and kicks off about the rest. It has been this way since she was born. Unusually though, the SENCO took the time to tell me that I was a good mother, even though I generally never get to feel that way. There were the usual concerns of what support are you getting? and an insistence that I need to try and limit Lily’s impact on myself and Ivy. To which the answers are None and How? When I told her that we’ve found the perfect post-16 course for Lily, but it’s in a city over 30 miles away, she insists that I should drop the idea – it will be too taxing both economically and/or physically if I end up having to drive her there, unfairly impacting on both myself and Ivy. She also admitted that Lily was an extreme case, the first time I’ve heard this from a professional. The Early Help scheme was mentioned, and again I reiterated that while I was willing to try anything, I couldn’t access it if it meant that Simon would be informed. Despite the fact that Simon has now absolved himself of any and all parental responsibility (while retaining parental rights, of course), the knowledge that I was accepting help from Social Services would be like handing him a loaded gun and he wouldn’t hesitate to use it against me. Meanwhile Lily has been telling people that she’s been told she’s a psychopath and is just waiting for confirmation.

I sit Lily down for a talk and explain that her behaviour has to improve. That she has to put more effort in. That while ADHD makes it harder to do certain things, like getting started on tasks, it just means that at times she has to force herself to do it, like it or not. That we all have to do things we don’t want to do; I certainly don’t want to get up at 6.30am to drive them both to the school bus stop. She promises she will try harder, and she does, for almost a whole day. When she asks, I tell her she’s been 100% better. Then I discover she’s lied about finishing her Maths homework, neither has she made any attempt to tidy her room. Next morning I have to tell her several times to get up. I tell her she needs to read through her science topic for a test next week; she disappears to her room and refuses to come out. She doesn’t clean her teeth; by rights she should have a mouth full of fillings by now, she’s evidently hit the genetic jackpot. She goes to school without brushing her hair or teeth yet again, and yet another teacher emails me about homework not handed in, meaning that Lily is still lying to me about it. In her room, along with a mouldy apple core, discarded food wrappers, piles of detritus and dirty laundry she has a piece of broken glass by her bed and I know I need to check whether she’s been self-harming again. When I try to tackle her about the homework and emails from teachers, knowing she’s been given a detention over it, the lies continue and she denies it all, meanwhile Ivy chimes in that several of her classmates were there and told her that Lily was screaming at the teacher.

Sanctions are taken; Lily’s computer is confiscated, the WiFi password changed, the PlayStation put away. Result; behaviour miraculously improves, or at least it does until Lily gets what she wants, at which point it inevitably begins to slide downhill again. This time around, her computer gone and access to the internet withdrawn, she snapped at me that no, she wasn’t doing the dishes as requested, as I’ve got nothing left to lose. Battle after battle, day in, day out. The latest? That by trying to ensure she does her homework, I’m triggering her. If excuses were pennies, I’d be very very rich. The situation doesn’t change, only my ability to cope.

There’s over a month to wait before the next CYPS appointment, I don’t know how long before actual treatment begins. School holidays are coming and I don’t know whether to be relieved or scared. The only option meanwhile is calling the CYPS Crisis team, which makes me incredibly nervous as I don’t know what it will entail, whether I will have any say it what happens to Lily at that point. Because also; this isn’t a crisis. This is just what everyday life looks like.