Not waving, drowning.

7.30am. The water feels deliciously cool as I walk down the steps into the pool. The kids have been dropped off at the bus stop, and I’ve realised that rather than turning around and going back home, I could keep on driving and get to the leisure centre for an early morning swim. I’ve registered with a local scheme that gives a free swim pass to children with a disability, and to their parent/carer- it’s time to make use of it. I’m not much of a swimmer, but it’s not so much the swimming itself, it’s the noise and splashing and kids jumping in over my head, and the wet floor that brings me out in an overwhelmed, hyper-stimulated anxiety attack. At this time in the morning though it’s quiet, just me and the pensioners. I desperately want to get back into shape, feel fitter and healthier but since my battle with plantar fasciitis last year I’m nervous about putting my feet under strain. This seems to be the right answer; quiet, calm, gentle. My old-lady breaststroke style of swimming is entirely fitting here, fast enough to still count as exercise, yet giving me the space to iron out my thoughts and ease into the day. I begin to get excited; I’ve found something that works for me, 20 minutes of respite, of precious and healthy self-care to start my day with. Can I keep this up during the holidays when I don’t have the school run? I ask myself, feeling that the answer is still a yes. I know I need this.

I swim on the Monday and Wednesday. Friday morning, I’m tired but push myself to pack my swim bag anyway – I want to make this a habit and I know I’ll feel better for it. My membership card scans on the way in and I head to the changing room, only to hear the shrieks of over-excited kids already in the pool. I peek in and see lots of children throwing a ball around in the pool. Evidently, it’s not the early morning session I was hoping for. Back to the desk; Sorry, I’ve only just started coming in the mornings, is it on at a different time? The receptionist explains that the swim session doesn’t start until 8am on Fridays. A 20 minute wait; I decide to head back to the car to retrieve a book to read, given that the cafe doesn’t open until 9 and there’s absolutely nothing to do but stare into space in the meantime.

7.55. I’ve been reading in the car, but now put the book away and head back in for a swim. This time however, my card doesn’t scan. “Can I take a look at your card?” the receptionist asks, scanning it at her desk. “Oh, there’s nothing on your account, you need to pay.” I explain that I’m a member of the free swimming scheme. “No, that’s only if you’ve got the young person with you.”

I leave.

There are tears in my eyes as I stop off at the 24 hour supermarket to pick up something for dinner. I’m struggling not to cry as I drive home. I check the website for the swim scheme. It’s badly worded, talks of free swimming for disabled children and their Carers, but says nothing about it being only when you’re accompanying your child. I even phone up to check.

“Is it possible for the organisation to ask for Carers to be able to swim for free, just to give us some respite?” I ask.

“No, the leisure centres are doing us a favour as it is,” she answers. As if the leisure centres weren’t raking it in already, and also receiving public funding.

“But the over 60s swim for free?” I’ve heard the chatter in the changing rooms – these are pensioners who are not struggling financially. I don’t understand why they can swim for free but Carers can’t.

There’s the bottom line; I can only swim for free if I’m taking Lily. Except of course, I can’t take Lily to the early morning sessions, even if it didn’t clash with the school run; she’s far too loud, too chaotic. There would be complaints. Similarly, it’s hell for me to swim during Lily-friendly sessions; I just can’t bear it when it’s so loud and crowded, that adds to my stress rather than relieving it. I desperately need respite, and I desperately need exercise – but I will have to pay for both. If I managed to get a concessionary swim price, it would be £2 per swim. £6 per week. Over £300 a year. Non-concession, it’s £3, £9 and over £450. Our much-longed-for holiday, in other words. So while I could bumble along paying £2 per swim, I would no longer be enjoying the sessions because I’d be thinking too much about what they cost. It would cease to be me-time and become something I was paying to do in order to get fit. No longer a treat. I should be able to move money around, do it anyway – yet mentally and emotionally something has shifted in a way that’s hard to explain. Perhaps it’s because the free swimming felt like a gift, an acknowledgement that caring for an autistic child is so difficult and here was somebody who wanted to help me in some way. Having to pay turns that into Tough. Get on with it. Perhaps I’ve just reached the end of my rope, can’t take any more knock backs. Perhaps it’s anger at how once again, the people at the bottom of the ladder miss out; if you’re struggling financially then exercise becomes a luxury. Realistically, even “free” activities require money; eg a decent pair of trainers if you’re taking up running, otherwise you’ll wreck your feet.

I’m left feeling like I can’t have nice things. That the Universe has some kind of personal grudge against me, that this has been a pattern for over 10 years now; any time that I find something that makes my life easier or happier, it’s taken off me again. Just a taste, just enough to get excited, then – poof! Gone. That I want to be happy, grateful and generous in this life – but events keep conspiring against me to a point where by rights anger and bitterness should surely be the default emotions. It’s so much work to try and reverse this negative spiral – yet it’s like pushing a washing machine up the helter skelter; crazy, difficult and the minute you try to rest for a minute, it’s going to slide back down and crush you.

A few days pass. I talk to Mum, who does her best to talk sense into me. “That’s only what you’d spend on coffee and cake in a cafe, and it would be doing you good,” she reminds me.

“Yeah, it’s just I’ve taken out gym memberships before and just wasted them, haven’t gone in.” Being surrounded by no-neck muscle-grunters and perky gym bunnies is not my idea of fun.

In the meantime, my blood results come back from the GP; surprisingly my thyroid is working just fine and for once I’m not anaemic – my constant tiredness is a medical mystery. However, I’m now officially in the pre-diabetic stage. If I don’t get my weight, blood sugar etc under control then I’ll likely develop Type 2 Diabetes within the next 5 years. I’ve been wanting to improve my general state of health – the blood results are the final kick in the pants that I need. It’s back to the 5:2 plan, to cutting my emotional dependency on sugar and comfort food and to getting back into shape. Perhaps the lesson that I need to learn is not that the Universe doesn’t want me to have good things, but that it’s time to start looking after myself properly, which means being willing to invest in my health . I call the Leisure Centre.

Hi. I want to take out membership.

Grand Day Out

(My Nan would have called this a “Knicky Knacky Noo Shop,” but I’m sure they’d prefer “Antique” or “Vintage”, Notting Hill.)

Lily has regular clinic appointments in London, which on the whole we tend to treat as a Grand Day Out, catching the first off-peak train and waiting until the afternoon rush hour is over before making our way home. A couple of times I’ve tried to fit in taking Lily to London while also getting Ivy to school but it caused to much chaos and stress. When the last trip meant an hour and a half’s delay on the train while Ivy was home alone, I decided enough was enough – Ivy comes too. Both children being off at the same time inevitably makes school suspicious, as if I’m determined to sabotage their education by secretly nipping off to the Seychelles for the day. But no – it’s a genuine hospital appointment, and I’m doing the best I can to balance everyone’s needs including my own. The trip is educational in its own way – as a former home schooler I recognise that everything has educational potential – and we usually end up in one of the museums, or exploring somewhere new. School holiday appointments bring their own problems – yes, we’re not missing school, but London is far more busy and crowded, proving too much for Lily’s Aspergers. Lily also refuses to use the Tube when it’s crowded, resulting in some epic walks across London to make it back to Paddington on time for the train home – this was especially difficult when I was hobbling along with plantar fasciitis, having to practise Lamaze breathing techniques to get me through each step of a three mile walk from Camden, having already been on my feet for most of the day.

(Sculpture or alien invasion, we couldn’t quite decide, River Thames.)

It’s hard to believe that I once wanted to live in London. I was all set on a career in The Media, without really knowing what that would look like, just that I’d be heading off to London to do exciting things in film and television or magazines. Instead I fell in love with Simon and moved to a tiny town where Media careers simply weren’t a thing. Now when I look back I’m not sure whether that was a wasted opportunity or a lucky escape – I’m not sure that I’d like the person that I’d have to become to succeed in that game. Certainly I quit my on-the-job training as a features journalist when I was being asked to phone an elderly woman who I knew was sitting in a hospital holding hands with her second husband as he was slowly dying from a brain tumour, to ask her whether her previous fiance had actually died in her arms or just on the floor. I couldn’t believe that anyone would think it was okay to do that, but the young woman on the other end of the phone didn’t seem to register that we were dealing with people’s very real lives and emotions and that there was a duty of care not to traumatise an innocent person for the sake of a single sentence of the story. I’d struggle to live in London now; the 24 hr hectic, non-stop pace, the busyness, the crowds, the glazed, unconnected look on people’s faces as they ignore each other in a bid to find personal space. It’s an entirely artificial lifestyle in a hard, artificial environment, something that I seem to struggle with more and more as I get older.

(We’ll take this one please, Notting Hill.)

The 2pm appointment cut into the day, leaving not quite enough time before or after to really do much. We decided to explore Notting Hill, finding brightly painted townhouses and a vibe on the chichi side of boho. One of the streets was unbelievably picturesque, each painted house seemingly trying to compete with the next, all with lovingly tended tiny front gardens that showed that even the smallest space can be transformed into a personal haven. We decided the house with roses spilling around the door and windows was our favourite. Neither of the kids have seen the eponymous film, but I pointed out some of the landmarks nonetheless; the Travel Bookshop, now a tacky tourist souvenir shop, the blue door that was supposedly Hugh Grant’s house, the cafe where he buys the drink he spills over Julia Roberts. The kids just asked who Hugh Grant and Julia Roberts were, and I felt ancient. We found a small public park in one of the squares, and sat to eat our sandwiches. There are countless such pocket parks around London, some public, some private, providing small sanctuaries of green to counteract the hectic pace of the city; more and more I find myself drawn to and appreciating such spaces.

(Pocket Park, Notting Hill.)

On the spur of the moment, we decided to take the bus to the hospital rather than disappearing back underground; remarkably I managed to work out which bus to catch from which bus stop. The drawback of the Tube is that you never build up a sense of London, how the areas connect and interact, the flavour of each district – each location is an isolated dot centred around the nearest Tube station. From the bus we could get a sense of people’s everyday lives, from the blocks of flats and corner shops, to the hidden Mews and gold Maserati. Plant pots balanced on windowsills, balconies dressed up with tiny gardens, a table and chair, or a washing line; little glimpses of lives being lived, of people claiming their spaces and dressing them up.

(Matching planters extends the wall height, creating a private courtyard, Notting Hill.)

After the rather intense appointment, we headed to South Kensington – Lily into the Science Museum while Ivy and I went into the V&A, relieved that Lily is of an age where I can let her wander on her own, mobile phone in hand. We’d intended to go look at an exhibition, but by that point we were both too hot and frazzled. Instead, we took our shoes and socks off and sat in the courtyard garden, dipping our feet into the water, instantly feeling calmer and cooler. A group of men in suits sat behind us, remarking to themselves that the toddlers had the right idea, going paddling, isn’t that what we all want to do, take our shoes and socks off and get in the water? I wondered what was stopping them. There were no signs up telling you not to put your feet in the water, no members of staff patrolling the perimeter. It was a very hot day. On some days I might have turned round and asked them directly, my own feet firmly in the water; what’s stopping you? Not on this day though. Too hot. Too overstimulated. I let them stew in their business suits. When we were ready to go, we rescued the fallen leaves from the succulents that had been planted beneath two tall trees. It was clear that these beds were not the right environment for succulents, and from the looks of it they hadn’t even been planted properly. Ivy picked up the fallen, plump leaves and stored them in her packed lunch box, hoping to bring them home and replant them.

(Giant bubbles outside the Science Museum, London.)

We came out of the V&A by the new side entrance, all gleaming white tiles and stone. The sun bounced off the white steps, dazzling us. I wish they’d planted a couple of trees instead. I’m not a fan of sleek, minimalist modernism, not when everything in sight is manmade, unnatural. Put a few trees in, a couple of raised beds, and I’d be happy. Instead, they’d made a sun trap even brighter, even hotter, to the point where it was uncomfortable for our eyes. I thought of the YouTube video I’d watched in the bath that morning, a couple in Mexico who transformed a wall in their house with re-used, repurposed plastic bottles, turning them into chains of planters, each one dripping down into the one beneath, the water caught in a reservoir bottle at the bottom and poured back into the watering can. A refreshing wall of green. I thought of the tiny balcony and basement gardens we’d spotted from the bus, of the smart front yards in Notting Hill, all cramming as much greenery as they could into tiny spaces. It seems a human instinct to bring nature into our living spaces, to prettify and green up our personal environments. Yet too often nature is simply missed out of the equation when it comes to public spaces. I’m with Hundertwasser and his tree tenants and grass-roofed buildings. The city is an alien enough environment; we’re simply not designed for such high-density, fast-paced living – there are even video adverts on the side of London bin lorries, for goodness sake. If we venerate design as being entirely man-made, if we exclude plants and trees as being too messy for our sleek, hip, spaces, we create more artificiality. We contribute to the chaos of the city. Sitting around the courtyard pond, an environment with grass, trees and cloud-trimmed bushes, everyone was relaxed. On crowded tubes, busy pavements and visually over-stimulating unnatural environments – adverts crowded in to every space, people are frazzled.

(Wild strawberries growing in public park, Notting Hill.)

Often on the train home, I head into the corridor long before our stop, knowing that once we’ve passed the final station before our own, we head through wooded valleys where the river winds through. The window open, I breath in the cool air, smelling the damp earth, calming my hyper-stimulated senses with the greenness of it all. There’s still the drive home, the kids to be put to bed, jobs to be done – and then hopefully the first sip of a much-awaited cup of tea before falling exhausted into bed. Wondering how on earth people manage to live full-time in cities like London, so cut off from nature, knowing that I’m glad I’ve opted for a quieter life. Knowing too that we all need more green – in our homes, our gardens and in our public and work environments. And if anyone could work out how to cover a tube train in moss and ferns, we should give them the horticultural equivalent of a Nobel Prize.

The gift of an ordinary life

I think I might just have got the very thing I’ve been asking for for a long time; a week where nothing happened. Granted, it was preceded by a mental health crisis that I could have done without, but then there was definitely almost a week where there were no new problems to deal with. I cracked on with the garden, the housework, trying to catch up in general. It was bliss. This is what normal must feel like, I told myself. With the weather being so beautiful I’d persuaded the kids to catch the bus to and from school, which meant a much earlier start in the morning but resulted in so much more time and energy for me.

Of course, it couldn’t last. I made every effort to let the Universe know how much I appreciated the gift of a quiet, ordinary week in the hope that I would continue to be so fortunate, but no. Normality resumed. The quote for the shower came in around £500 more than expected. A phone call from school to let me know that other parents were expressing concern about Lily’s behaviour in class, given that she spent the whole time talking about being a vampire, seeing demons and being in possession of a Deathbook, all of which caused too much disruption in class to be tolerated. The CYPS crisis team had been contacted and were expressing concern that Lily’s epilepsy medicine might be behind what appeared to be some kind of delusional psychotic crisis, and the teacher urged me to contact them myself. Why? I found myself thinking. This is just normal for us. None of it is actually real, it’s more that Lily is now play-acting to an absolute extreme. A second call the next day to say that Lily had spent her IT lesson refusing to do any work, insisting instead that she needed to use the internet to help solve a murder in Utah. Thank God it was the last day of term, although the pastoral teacher didn’t think I was going to survive half term looking after Lily on my own and ordered me to make an appointment with the GP as soon as possible. All of this happened while I was in the middle of a meeting with a local charitable organisation in the hope that they could help me get back into work. Frankly, it did nothing but prove that a job would be impossible to handle right now.

The plan was to head up north to spend a few days with my family and celebrate my Dad’s birthday. We set out over an hour later than I’d hoped, because of course Lily had decided to get the late bus home from school so she could do her music, despite knowing we were heading out on a long drive. Similarly Ivy hadn’t bothered to pack the night before as requested, and the minutes slipped by later and later while I despaired of ever leaving, knowing how tired I was going to feel with a five hour drive ahead of me. Almost as soon as we set out though, the car started flashing up error messages; faulty brake light. Error; Anti pollution faulty. The car was struggling to get up to speed, feeling sluggish and juddery. I pulled into a garage to double check my air pressure, in the hope that this would magically transform the performance of the entire vehicle. No such luck. By the time we got onto the motorway, it was clear that the car wasn’t going to make it. Instead, we came off at the first junction and headed for home. This is after the car breaking down on the motorway in February, after paying to get through the MOT in January and after replacing the clutch last Autumn, plus repairs to the radiator. I did my best to get the car fixed on the following day, but the garage weren’t able to solve it in time before closing for the bank holiday, leaving me with a car that wasn’t behaving well enough to undertake any serious driving. Half term, bank holiday and we were stuck. The trip north was cancelled and neither could I risk any of our usual day trips.

Meanwhile Ivy has been falling apart over being placed in a new teaching group without any of her friends. She’s had such a hard time in the last couple of years that I’ve contacted school to ask if she can move classes – of course, all I’m getting back is the tired old we can’t make exceptions for one child or we’d have to do it for everyone. Oh really? So if she had hearing or sight difficulties they wouldn’t arrange for her to sit at the front of the class? Ivy has severe anxiety, probably ASD-related, and is still recovering from depression. I’m doing my best to explain to school that this grouping means putting her through further stress and anxiety, including IBS and nausea, so loss of appetite and skipping meals, insomnia and fear about going to bed, plus inability to concentrate in class, inability to raise her hand or answer questions, inability to contribute to group learning and projects, while struggling to control her breathing and fight off panic attacks. It’s taken so long to build up her confidence after all the trauma, and I’m tired of having her knocked down again by either Simon or school. But schools nowadays just close ranks; it’s all about conformity and saving face, there’s never an admission that they’ve made a mistake, there’s no compassion or flexibility. She spent most of today in tears and I’m tired of being fobbed off. So; yet another battle. And now Lily is intent on being “L” from Deathnote, at home, at the supermarket, at school… and now the Tax Credits form needs to be filled out, and so on and so on.

Please stop, I beg the Universe. Please, no more. Give me the gift of an ordinary life, just long enough for us all to recover. Outside, the roses are blooming; can’t we just stop for a while, long enough to smell them?

On Imperfection, Barrels and Buddha

May has brought a very unBritish heatwave, followed by its very own monsoon season, sometimes in the space of a single day and most usually when I’ve hung the washing out to dry. After over a week of scorching hot weather, the ground was too hard to dig and so I’ve shifted to other jobs; painting the fence and bench, revamping the patio area as well as trying to keep everything watered. Watering is tricky as there’s no tap at the back of the house and so watering cans have to be filled up in the kitchen or bathroom, carried dripping through the house and out into the garden. I’ve now managed to install a water butt, almost correctly, and so there’s some water available at the back, as well as a large barrel further down the garden, although this isn’t connected to any gutters and so only fills from rain falling directly in it. I’ve been setting out as many containers as I can to catch rainwater and manually refill the barrel – my garden looks like an episode of Bear Gryll’s The Island at times. It’s only when you don’t have water that you appreciate how sacred it really is. I will say nothing of the constant hiss of hosepipes in neighbouring gardens as I’m slogging down the path carrying watering cans of my recycled bath water. I’m so glad I mulched the new flower bed after planting, it’s done a lot to help my precious new plants to get through the hot weather.

Unable to make much more progress while the ground was so hard, I turned my attention to the patio. Oh dear. A large pile of thorny trimmings from the overgrown rosebush and trellis that needed shredding, bags of compost and mulch, plants awaiting a home, pots that once were plants and now were weeds, random bits of wood and pallets and much general debris. Not exactly a space that cried out to be sat in and enjoyed. After a good tidy up and sweep, the trellis repainted and the table and chairs reinstated, it’s now a lovely little patio where we can sit outside and chill, read on the bench, or have a meal. One of those jobs that feels overwhelming but doesn’t take all that long once you get down to it. It was all so much better… except for the barrel.

Yep. Not great. The barrel was left behind by previous occupants, and judging from the state of it, I imagine they inherited it from their predecessors. It was now a sad accumulation of weeds and building rubble, too heavy to even move. With the blazing hot weather still preventing me from digging elsewhere, it was time to tackle the barrel. Once I’d started digging out the soil, I discovered why it was so hard to move – the bottom of the barrel was full of bricks. I’m not sure if someone thought it needed bricks for drainage, or whether they just wanted to get rid of them or were hoping to use less compost, but it was as much brick as it was soil. It all came out, then fresh compost went in and I was ready to plant.

Back at The House in the Sky, I had bought half-barrel planters for Lily and Ivy, let them choose their own plants from the garden centre to create their own mini-gardens. It’s a lovely idea for kids, as it’s more manageable than a patch of ground and way cuter – the main issue is to make sure they get enough water. Lily chose a strawberry plant amongst others, and would proudly give Ivy the one, precious strawberry that it grew each year. There should have been others, I don’t know why it only generally managed one, probably slugs, snails and woodlice were to blame. But still, a moment of cuteness and generosity, a very rare thing to be treasured. By the time we moved, the barrels were falling apart and we left them behind along with so much else, so many hopes and dreams. All this was running through my mind as I planted, along with the interruption of a phone call from Ivy as the school bus had broken down yet again in the hot weather and could I come and pick them up?

I’m just in the middle of something, give me ten minutes and let’s see if they get a new bus out to you quickly.

Because sometimes you need to finish what you’ve started. The barrel was going to be something beautiful, a contemplative spot, somewhere for me to sit and enjoy. If I ran off now and left it unfinished, everything would likely sit there for several more days until I could get back to it, plants drying out in the heat, weed seeds blowing into the fresh compost, resolve dwindling in the face of new chores. So I planted, and put down a layer of cardboard between the plants and piled up cobbles and placed the centrepiece I’d haggled over in the garden centre…

Ta da! My new garden meditation spot. Not that I do any kind of proper meditation, but sometimes sitting peacefully outside is as Zen as it gets. My little Buddha is there to remind me to do just that, to take a moment and rest and breathe while enjoying the quiet, the birds, the flowers. To contemplate beauty and stillness, rather than the To Do list. The bus brought the kids home okay after all; Lily noticed the difference straight away and declared it to be our Japanese garden, while it took Ivy a week to notice, by which time the slugs were attacking the hostas with primordial vigour. No matter. My garden will never be perfect, neither will life be. I’m learning to try to make the most of it anyway.

What’s working now…

Pukka Lean Matcha Green Tea. I’ve long been suspicious of the bitter taste of a lot of green teas, but this one has a light, sweet taste that doesn’t go acrid if brewed too long, for people like me who tend to forget to take the teabag out. I’ve switched to a cup of this first thing instead of my usual builder’s tea and it feels like a cleaner, brighter start to the morning. Potentially a better source of caffeine than regular tea or coffee in my search to self-medicate for ADHD.

Sunshine. Good weather really makes a difference, especially in terms of getting out of bed for the school run. I try to compensate in the Winter with one of those alarm clocks that gradually starts to get light half an hour before you need to wake up. It helps. The weather has been uncharacteristically gorgeous in the past couple of weeks and so I’ve been trying to make the most of it.

Gardening. I always always feel better after working in the garden. It’s worth dashing outside even if it’s just to water the pots for five minutes. A decent session in the garden has a dramatic improvement on my mood, plus the bonus of being able to see my progress also lifts my spirits even if I’m just glancing out of the window.

Water. Drinking more of it, swimming in it (although I really hate public swimming baths), bathing in it, being next to it whether a little pond, a stream or the sea. Is it something to do with negative ions? I’ve decided my garden definitely needs a pond, plus it would be worth finding a little local spot where I can sit in relative privacy and enjoy the river.

Menu planning. At my worst I couldn’t think five minutes beyond my nose. I literally couldn’t manage to decide what we’d have for dinner a day in advance and so we ended up in the supermarket every single day after school, picking out a ready meal. A HelloFresh subscription got me cooking properly again, and made it easier for the kids to also help out with preparing meals – I’d definitely recommend them, although due to Ivy developing gluten and dairy intolerances, we’ve needed to switch back to our own meals. I’ve realised that even if I don’t have the brainpower to come up with a menu that covers the whole week, I can split the week into two (Mon-Thurs, Fri-Sun) and just make sure that the next 3-4 days are sorted. Cue better, healthier meals and a lower grocery bill. Current favourite cookbooks; The Happy Kitchen, and Jamie’s Five Ingredient Cookbook.

Magnesium Flakes. I’m not sure what peculiar sorcery is going on here, but a handful of these in my bath has transformed my skin from reptilian to baby soft. I’m hoping that the same magic is working somewhere on the inside too; magnesium is apparently an essential mineral for overall wellbeing. It’s apparently also good for plants, so I’m reusing the bath water in the garden whenever possible.

Massage. Wrongly seen as a luxury, this has been a lifesaver for both my physical and mental/emotional health. Stress leads to muscle tension which builds up into pain and headaches and ultimately looking like Quasimodo. Hot stone massage by a good therapist really helps to unwind me and keep me grounded; whenever I skip a few weeks because of budget or busyness, I end up regretting it.

Lifesum. A food tracker app, available on subscription. I used it for a while, then stopped when my comfort eating was getting out of control, but am now going back to it while I attempt the 5:2 plan. Lifesum has several different programmes you can follow with recipe suggestions, but mainly it makes it easy to record what you’re eating and keep an eye on the balance of carbs, protein, fats etc as well as counting calories. I’ve found that even just the act of recording what I eat means I make healthier decisions. I’ve not even been trying very hard, but week one and I’ve lost two pounds – not life-changing but the first time in four years that the scales have moved downwards.

Think Small. Book by Owain Service. A relatively short, easy read about goal-setting and making small, manageable tweaks to your daily routine in order to achieve the desired result. There’s plenty of stuff out there already, but this one really brought it home about how to schedule in new habits so that things actually happen.

The Durrells. Ivy and I have been watching since the first series, now Lily has finally joined in and discovered this essential Sunday evening drama series. Funny, heartwarming and touching without being saccharine, we’ve absolutely loved it; please make another series very soon as we’re already feeling bereft now it’s finished. I’m secretly looking forward to the second series of The Handmaid’s Tale – rather less gentle and not at all comedic but very gripping, one for me rather than the kids. In general there’s a need to be picky about what I watch, The News tips me over the edge into panicked, hopeless depression, and I can’t much cope with depressing documentaries at the moment, no matter how worthy. I’m wishing they’d show The Gilmore Girls again, heartwarming, cosy dramas are a must.

How will I know when I’m healed?

Reading Think Small has reminded me of the need to set achievable, measurable goals (SMART goals) that I can tick off as they’re completed. Although I try to do this with the daily To Do list and often add tasks that I’ve already completed just so I can tick them off, Think Small has helped me to see how big dreams need to be broken down into daily habits if they’re ever to be achieved. As I’ve designated this to be A Year to Heal, it got me thinking about what steps I can take in order to help myself heal – I can’t guarantee that at the end of the year I’ll be 100% better, but I’m keen to move forward rather than stagnate. First things first – how will I recognise that I’m healed, what are the main issues that are currently causing problems?

I think the main clue that I’ve healed will be when I no longer feel the desire to drive a pickaxe through Simon or Astrid’s skulls. I wish I was joking. Anger and injustice still burn through me on a daily basis whenever the details of what happened creep into the back of my mind. At first I questioned why I felt so bad, so unsafe, after all there are many women going through far far worse and I wasn’t facing physical violence. However, the Domestic Abuse recovery course explained to me that the way Simon and Astrid were spying on me and stalking meant a violation of my sense of physical safety. That’s fundamental in terms of Maslov’s Hierarchy of Needs, the need for shelter and safety. Which means we’re dealing with something primal; the need to protect yourself and your children. If an intruder entered your home, went through your possessions, took things, threw things out, and threatened your and your children’s right to feel safe in your home, you’d wind up pretty angry – if you caught them in the act, you would be permitted by law to defend yourself, which basically equates to physically attacking them. The fact that the intruder was my ex-husband and his girlfriend doesn’t make the situation any more bearable – in fact, the violation is deeper, more personal. I trusted him. He betrayed my trust again and again, and for that I basically want to hurt him; of course I would never act on my homicidal urges, but at times the intensity of my feelings makes it feel as if I will never heal. The anger has nowhere to go, other than creating havoc in my mind and body. I will know I’m healing when the incessant rage dissipates.

Fundamentally I don’t feel safe. I don’t feel safe in my own home despite having moved house, a hangover from the past few years of being afraid to go out, of worrying that Simon or Astrid were waiting to swoop in and invade my home yet again. When we’ve gone away for the weekend to visit family I still worry that they will try to break in to my new home, I won’t let Lily have a key for this very reason. When I’m out and about, I don’t feel safe either, other than in a very few limited places that I’m fairly sure Simon and Astrid don’t visit. Hyper-vigilance is ever present, scanning the horizon like a meerkat sentinel, ready to dart back underground at the first sight of anyone who might be them. My chest is always tight with anxiety, my heart fragile and fast to the point where I’m scared about my health. I will know I’m healing when I start to feel safe in the world again – although given current global politics, this may be heard to achieve. At least, I will know I’m healing when I no longer carry this constant burden of anxiety and fear, when I don’t have a panic attack every time I see someone who looks like either of them.

My mind constantly replays the abuse, trying to explain what’s happened, trying to reason with Simon, rage at Astrid, rehearsing what I should tell the judge if I’m dragged through court again, and what I should have said last time. I struggle to get to sleep at night, resorting to listening to meditations and sleep hypnosis videos on YouTube. I wake in the early hours and my mind immediately picks up where it left off. This is part recrimination against my failures to achieve justice in court, and part preparation in case it happens again, protecting myself. In counselling, we discussed how Simon essentially tried to destroy me with lies and accusations, and that this constant inner voice arguing against him is a survival mechanism determined not to give up. Silencing it means killing off that small part of myself that has endured, has fought back. I need to find it a healthier channel, switch from PTSD 24/7 to Peace of Mind. I will know I’m healing when my mind is no longer caught in this incessant loop of recrimination and replaying.

Physically, I’m a wreck. I’m overweight from comfort eating and horribly unfit – particularly after developing plantar fasciitis last year which made it hard to walk. I have insomnia and am still prone to anxiety and panic attacks. It’s not possible to be this stressed for this long without a serious impact to health. I’m permanently exhausted, a combination of said anxiety and insomnia, plus two demanding teenagers and perimenopause. Self care has fallen off the bottom of the To Do list – I feel fat, frumpy and tired. I will know I’m healing when I start feeling fitter and more energetic, and able to better take care of myself. This includes a healthier relationship to food and making sure I get some form of exercise.

The house move was impossibly hard, made far worse by being bedridden with severe flu for the best part of two months while having to downsize to a house that was about a third of the size of our existing home. The stress around the move was unbearable, but I told myself that this was the worst part, once I’d moved I could look forward to a fresh start and take my time putting things in order, there was no hurry. What should have then been a year of gently setting up home turned instead into a second year of having to fight my corner in court and being consumed by stress and anxiety. Overwhelm is not a helpful emotion when trying to set up home. It’s now time to create a home that nourishes us, to reclaim my environment. One of Simon’s accusations was that I was a hoarder, which has resulted in a year of obsessively watching the Hoarders TV show – I think I can safely say that I’m not a hoarder, but ADHD means that I struggle with organisation and tend to be somewhat messy and cluttered, it’s hard to make decisions about what should go where, what to keep and what to let go of (and don’t get me started on the donate/sell issue.) When the outward circumstances of your life are acute stress, anxiety and chaos, it’s no wonder that your home environment begins to reflect this. I will know I am healed when I’ve been able to deal with the remaining clutter and feel like I’m managing on the domestic front; when our home feels nurturing rather than a source of stress, when I can let go of the feelings of guilt and shame that Simon’s accusations engendered. Also Simon – given the amount of old crap in boxes that you’d stashed in the attic which I discovered two days before the move, you should maybe not be throwing around accusations.

Previously I used to have friends round for impromptu bring and share gatherings, food, wine, laughter and good times, but that’s not happened for a long time, it stopped even before I moved house. It’s not just that my house is now too small, it’s also that having people in my home makes me feel anxious and on edge. Inviting a friend over for an Easter dinner was a major achievement, and even then I found it hard not to watch the clock. Having a workman here to fix the boiler was unbearable, particularly when he had to go into all the rooms, including my bedroom. I will know I’m healed when I’m able to have friends round without feeling that I’d rather be undergoing major root canal surgery.

My career, tiny though it was, has been destroyed. A post-divorce name change didn’t help, it feels like starting over, plus several of my existing contacts have moved on to pastures new. Stress meant having to stop working, I couldn’t focus on writing. My previous blog was used against me, a story of mine was used as evidence in court and I had the joy of a potential client turning out to be Simon and Astrid using a fake alias to try and entrap me. Now, at the point where I could be returning to work, it feels like my brain is entirely addled. It’s hard to focus on anything, hard to stick at things, difficult to know where I should be putting my energies. My confidence is at a low ebb, particularly with Simon’s insistence that I was deluded about my abilities as a writer. It’s hard to reach out to former colleagues, never mind forge new contacts – no, not hard, impossible in my current state of mind. More than that, I’m scared of putting anything of myself out into the world again in case Simon finds new ways to use it against me. I will know I’m healed when I’m able to write again, consistently and professionally.

I will know that I’m healed when I start looking forward to the day ahead instead of dreading it. When I no longer have to fight hard to find reasons to go on living, beyond looking after the kids. Ultimately I will know I’m healed when I’m able to leave the past in the past rather than having the abuse creep into every aspect of my daily life with its poisonous, painful reminders. And right now, it’s the hope that one day I will be healed that’s keeping me going.

Quest for Fun

Fun. I puzzle the word over, chewing on it. There is precious little fun in my life and I’m trying to figure out why. Oftentimes during the marriage we’d set out to have fun, but somehow miss it – I’d always put this down to having to deal with Lily’s demands and outbursts, leaving us tetchy and exhausted. Now I wonder whether there was more going on, whether the dynamics of our relationship were skewed against any positive outcome. Certainly after the split my happiness quota went through the roof; suddenly I had friends, a social life, I held gatherings at The House in the Sky full of laughter, shared food, homemade wine and kids running amok in the lanes. My overriding feeling was of being me again, after years of losing touch with myself. But gradually Simon’s abuse began to curtail this newfound happiness; I was soon lost, confused, exhausted, fighting for my survival. I stopped having people over – I didn’t have the emotional energy to deal with others, there wasn’t enough of me left over to give out to anyone else. More than that, I’d raised the drawbridge. With Simon bringing Astrid into the home behind my back to spy on me, I no longer felt safe. I didn’t want to go out, nor did I want anyone else in my home. As soon as anyone arrived, I’d feel edgy and anxious until they’d gone again; sadly that’s still the case. If I went out, I’d worry that Simon or Astrid had snuck into my home again, were going through my papers – I took to storing all the divorce documents in the boot of my car. I felt like I was being watched wherever I went; Mum sent me Starbucks vouchers to go out for coffee, but I worried that someone was recording each bite of cake, that being able to afford a latte would be used in court as evidence that I had too much money to spend. In reality, it was a generous gift from my Mum, doing what she could from a distance to help with my increasing social anxiety. Paranoia began to take over – but is it really paranoia when you’re actually being stalked?

Abuse is isolating. It’s insidious, creeping up on you without you realising what’s happened – by the time you wake up and realise what’s going on, your confidence and wellbeing have already been deeply eroded. By the time you’re able to find the right labels for the confusing mess you’ve found yourself in, your life has already fallen apart. Stress – by which I mean full blown panic attacks, uncontrollable crying, insomnia, severe anxiety and palpitations – meant I had to sign off work. Although that was over two years ago, it’s only just this week that I’ve begun to realise the full implications. It’s not just the loss of my career, I’ve lost the social side that came with my particular line of work. Previously, most weeks I’d have some kind of event to attend – a reading of someone’s work, a workshop, a networking event. Now – nothing. I’ve lost touch with my former peers and colleagues, most people have no idea about what’s been going on. Before, I had something that was purely for myself, something that I was passionate about, something that bolstered my self esteem, that gave me purpose. Something that was ultimately fun, if at times demanding. To have all that systematically destroyed by Simon has been devastating. So; social life destroyed, career destroyed, confidence and self-esteem destroyed, home gone. It’s only now that I’m beginning to add up the full cost of Simon’s abuse and realising just how much I’ve lost; fun seems to be one of the many casualties. I’m no longer able to do a lot of the things that used to bring me joy, plus my now precarious mental health means it’s harder to find enjoyment in whatever I try.

Not much fun then. There are moments when the kids and I will be in hysterics over our own daft jokes, yet these are counterbalanced plenty by the number of arguments and conflict. I’m doing my best to appreciate the good moments, to count my blessings. Next minute I’m triggered and having to walk out of the Stress and Anxiety course session, breaking down in tears. Near constant conflict with Lily means that the good mood I’ve tried so hard to achieve is wiped out in seconds. The rest of it is the daily grind, the struggle to keep up with the endless round of chores and duties.

This is no good. The realisation of how much I’ve lost was a bitter blow, bringing further feelings of what’s the point? The feeling that I don’t have anything in my life that’s just for me. Wondering whether I will ever find happiness again, whether I can rescue my sense of fun. A Quest for Fun is in order, and so I’ve nominated Fridays as Fun Fridays – the one day of the week that I’m reclaiming for myself, with the sole purpose of doing something that I enjoy. As they say, if you always do what you’ve always done then you’ll always get what you’ve always got. If you want something to change – ie to enjoy life more – then you have to change something. It won’t happen on its own. So Fridays are now dedicated to rebuilding my long lost sense of fun, which actually requires some planning in order to make sure that this happens – at the moment I’m thinking I’ll attempt to visit some of the many gardens, stately homes etc that are in the area, as well as art exhibitions. Taking a camera is key – I don’t know much about photography, but I know that having to literally focus on taking a picture means that my mind isn’t focused on my problems but on something beautiful instead. One small shift at a time in the journey towards creating a life worth living, one small step towards self care: I matter, I have the right to take the steps necessary to heal, I have the right to a full life, I have the right to be happy.