Dodging the email bullet.

It’s telling that while there was no contact from Simon during the past year and a half while we still lived locally, things shifted as soon as we moved away. Evidently he couldn’t bear the thought of losing control over us. Suddenly the child maintenance wasn’t being paid in full, and the lies to the CMS started – the outrageous claim that he still retained equal shared care of Lily, despite not having her overnight for over two years. Then a letter arrived at my parents’ house – well no, given this was Simon, he sent it recorded delivery, meaning Dad had to take a bus to collect it from the depot, not knowing what it was. It’s infuriating to have him send an ordinary letter in this way, it sends the message you can’t be trusted so I’m having to use recorded delivery. This is what he did to me when he was bothering to write to Ivy, and it caused so many problems with letters not being delivered and me then having to go and collect them. This time around he included a very curt note to my parents and asked them to forward the enclosed letter to Ivy. We were there at the weekend, so Mum was able to pass the letter directly to Ivy, who glanced at it and tossed it to me.

Ivy has found it difficult to receive letters from Simon, as his tone is one of pretending that nothing has happened, he’s never done anything wrong and he can’t quite believe that she’s treating him like this. Or there’ll be an invitation to do something with him and Astrid, which she finds deeply upsetting; “why would he think I’d want to do that?He was sending a letter every couple of weeks while we were still at court, but this stopped almost immediately once court was over. It was a relief as I didn’t dare to withhold the letters from Ivy, but she would inevitably be upset and hurt, ruining the progress we’d made on rebuilding her mental health. This fresh letter had almost no content, just that Simon had heard that Ivy was finding the move hard, and asking her to contact him. Why, Simon? So you can build a fresh case against me? We know by now not to trust anything he says or does, so this is not merely down to fatherly concern.

Mum sent Simon a brief response – she initially asked me to draft it, but this got nowhere. The end result was a mess; both the letter and my emotions. I just could not do it.

Out of the blue I received an email from him a couple of days later, the first contact in almost two years. To say that I felt sick as it flashed up on my phone would be the understatement of the year.

His tone to me is that of a Headteacher dealing with an unruly student, or the CEO of a company dealing with a recalcitrant supplier. Curt, arrogant and jaw-breakingly patronising. He says he’s at a loss as to how to address the situation, he can’t understand why I would move, and that it’s made it very difficult for him to retain contact with the children, particularly Ivy, so what do I suggest?

My immediate reaction? What contact? He sees Lily on average for two hours a month, max. He hardly ever phones or texts her. He has sent Ivy maybe 3 letters/cards in the last year. If there had been any meaningful contact between Simon and the children, I couldn’t have considered moving. Yet Lily has already told the new family support worker that she only really sees her Dad to get him to buy things for her. The previous support worker noted that Lily was just as interested -if not more interested- in the food on offer at their monthly brunches at a local restaurant as she was in seeing her father. And as Lily was desperate to move here, even knowing it would make it harder to see her father, the not-quite-2-hours-a-month were not enough of a factor to prevent us from moving.

It would be all too easy to dash off an angry response, telling Simon exactly what I think of him, and while I’m at it, blast both barrels at him for the twisted games he’s been playing over the maintenance and lying to the CMS. Experience has taught me that there’s no point. Neither is there any point in trying to engage in any kind of meaningful, thoughtful communication with him. All I will get is denial and gaslighting, him accusing me of everything under the sun, telling me black is white and up is down. You can’t reason with someone determined to be unreasonable.

My mood plummeted as soon as I read it. I can’t bear this. I can’t bear the thought of being plunged back into the upsetting, confusing craziness that contact with Simon entails. I can’t bear to receive more insulting, patronising emails in which Simon insists that the opposite of the truth is the real version of events. No doubt it’s somehow my fault that he’s not been paying maintenance, my fault that he’s had to lie to the CMS. I wish I was kidding, but that’s how his mind actually works – it will be my fault that he’s having to lie to the CMS, just as it was my fault that he threw Lily out. He doesn’t want to do these things, but he has no choice because of what I am doing. Of course, what I’m being accused of is usually a pointer towards exactly what he’s getting up to. He sends letters by recorded delivery, insinuating that I can’t be trusted to hand them over to Ivy, because he knows that he would withhold them from her if the situation were reversed.

I haven’t yet healed my mind from the insanity of the abuse, and I’m not willing or ready to go back there. More; I’m determined not to hand over any of my hard-won power back to him. It’s time to remember my own rules – never reply immediately. Take time to think my response through. The thought of losing my power – or my sanity – is terrifying. This time around, I’m determined not to let it happen again.

A fresh start

Despite the challenges of moving from the House in the Sky to the Tiny Terrace, I clung to the belief that it was a fresh start. With the divorce and court over, I could take as long as I needed to settle in and rebuild my life, create a new home for my kids. However the abuse didn’t stop; now that Simon was openly living with his new partner it ranked up a level, resulting in our youngest deciding she didn’t want to see him any more. Cue another court case as he attempted to force Ivy into maintaining contact, at which point it became clear that he would stop at nothing to destroy me.

The fresh start disappeared under the burden of legal documents, reports and lies that I was left defending myself against. Rather than creating a new home, I was struggling to survive. Boxes remained unpacked, furniture that didn’t fit up the narrow stairs stood mouldering outside on the patio. When I look back, I’m amazed I managed to get anything done at all, never mind setting up a home! After almost ten months of legal battles, it became clear that Simon was not going to get his way; Ivy could not be forced into seeing him. A month later, he kicked Lily out with only a week’s notice, insisting she came to live with me full time, her belongings dumped on the street outside our house.

The Tiny Terrace had never been intended for the three of us to live full time in. Less than half the size of the House in the Sky, no parking, and not on the school bus route; these were manageable compromises when I bought it in the belief that the kids would only be there for half of the time. It was the only property I’d seen that was remotely suitable while Simon was ramping up the pressure to get us out of the family home. One year on, that compromise had been stretched to its limits.

Single-parenting is hard, even harder when you’re living in fear that everything you do is being judged. Everything was on me, all of the time, spinning all of the plates single-handedly with the added fear that Simon would exact some form of overblown retribution if I stumbled. My own life had ceased to exist, I no longer worked nor socialised. I didn’t go out without the children, I lost touch with nearly all of my friends. When my own mental health challenges became unbearable, it was clear that things needed to change; move now, or stay put for at least another two years until Ivy had finished her GCSEs, knowing that our struggles were set to continue. It was time to move, and this time I would make sure that it really was a fresh start for all of us.

Although we would be bringing some of our challenges with us – autism doesn’t go away – by relocating we’d be leaving some of our problems behind. No more panic attacks in the supermarket, scared that I’d bump into Simon or Astrid. Being able to attend local events without anxiously scanning the crowd. Simon not knowing our new address meant he couldn’t spy on my home. There were positives too; a school for Ivy that had better pastoral care and was within walking distance. The chance for Lily to attend her dream college course. My family within an hour’s drive. Hopefully the fresh start would also give me the chance to not so much rebuild but create a new life for myself and begin to put the past behind me. It felt like the end of a long struggle, and I was certain that the abuse would be consigned to history, there was simply nothing else that Simon could do to me now.

Or so I thought.

Money was tight, especially as we squeezed in a last minute holiday before the move, our first in years and an important symbol marking the end of one way of life, the start of another. I overstretched myself as the first house fell through, and ended up having to borrow money from my parents to pay the removals firm. I started keeping a money diary, but as I was in the process of switching banks it was more difficult to keep track of my finances; all I knew was that there wasn’t enough money in my account and I blamed myself for overspending. However, the new banking app on my phone soon revealed the issue – Simon had not been paying the full amount of maintenance. When the statements from my old bank arrived, it showed he owed me over £1500 – no wonder I’d been struggling. The next payment date rolled around, and less than half of the set amount was paid. Simon had evidently decided to pay what he saw fit, rather than the legally-mandated figure.

Financial abuse is one of the earliest markers of domestic abuse, and withholding child maintenance falls into this category. It’s no coincidence that this happened just as I moved away from Simon – this was retaliation, an attempt to regain the control that he had lost. For the victim, it creates constant anxiety and a high level of stress – money is an inescapable reality. It has meant having to constantly check my bank balance, buying only the bare minimum, putting off the purchases that we need for the new house. Each time that I fretted over money, Simon was forefront in my mind as a constant, intrusive thought. Of course, there was no warning that the money wouldn’t be paid into my account, no time to readjust or budget for the difference. “Sorry, my ex hasn’t paid the child maintenance” isn’t an excuse that goes down well with utility companies or the supermarket cashier. If I was overdrawn, I would have to pay charges, even though it was Simon’s fault – even if I managed to get him to pay the arrears, there wouldn’t be any financial penalty for him, no compensation for the difficulties or fines that he had caused. To have this happen right when my expenditure was necessarily at its greatest – moving house – was cynical and deliberate. Depressingly, our fresh start rapidly deteriorated into more of the same.

Simon doesn’t know how much money I have coming in or going out, what financial commitments I have, whether I’ll be plunged into debt without that money. He seems not to care about the impact it has on our children, from missing out on opportunities, school trips, clubs etc. to struggling to cover the cost of the basics such as clothes, transport to school and college, even what food we eat, as well as the kids worrying about money and feeling stressed. Such issues are the permanent price of poverty; what’s frustrating is when you are plunged into poverty purely because your ex is deliberately not fulfilling his legal obligations to his children. Getting a job isn’t so easy for a single mother with a large career gap and a kid with special needs – Lily had an epileptic seizure at college last week, necessitating a panicked 90 minute drive to get to her, then a three hour stint in A&E, not something that fits in well with a 9-5 job.

The hidden cost of financial abuse is the impact it has on your ability to parent – the children have a mother who is constantly anxious and stressed rather than happy and fully present with them. The fresh start we’d hoped for, the chance to make sure that the last years of their childhood were happy, has been sabotaged yet again by Simon’s abuse. By attempting to punish and control me, he’s hurt his children. And that for me is the most painful part, having to accept that the love he once had for his kids has been suffocated by the hate he now holds for me. It’s hard to reconcile the husband and father he once was to the monster he has become. Financially I’m losing out – but ultimately, he has lost so much more.

The trouble with CYPS

Another CYPS appointment; drive over 11 miles to school to collect Lily, drive 11 miles straight back to the clinic where the session is held. Sit in a waiting room where Heart FM is playing at full blast, in case Sarah, the therapist decides to involve me in the session. The chairs are ridiculously uncomfortable, the inane shouty DJ is giving me a headache and there’s nowhere to get a cup of tea. I wait for half an hour, trying to use the time to answer emails, before I’m summoned into the room. Sarah begins telling me about how she’s been learning about Lily’s interests and would I like to hear about what she’s been doing on the computer? I bite my tongue before I can point out that I live with Lily, that the computer is in the living room and therefore I get to see and hear what Lily is doing on the computer. Every. Single. Day.

Sarah tells me what Lily has been doing on the computer and asks me for my reaction. Lily’s computer use is highly problematic for us as a family; she becomes obsessive and addictive while on it, and entirely disregards all of the rules and agreements that we’ve made about it, namely that she needs to have done her homework, revision and any outstanding chores before using the computer. Time and again I’ve had to drag myself out of bed to tell her to get off the computer and go to bed, even after midnight. While gaming online, she yells, screams and swears at the top of her voice no matter how many times I intervene and tell her not to. If I try to turn the computer off, she physically fights me to stop me – the only thing I can do is then confiscate the entire thing when she’s at school. Rather than do what it takes to get the computer back – chores and homework (and by chores I literally mean one small task per day) – she then resorts to aggression or emotional blackmail such as threatening to kill herself if she doesn’t get it back. She switches it on as soon as she gets back from school, or first thing in the morning if there’s no school, and will remain on it all day and late into the night. If Ivy needs to use the computer for homework, there will be yet another fight. Lily will promise anything to get the computer/internet back when it’s in Time Out, but will never stick to those agreements. She has posted videos on YouTube in which she’s ranting, swearing and being aggressive, and refuses to take them down, has posted one in which she was improvising a flamethrower in Simon’s kitchen, and I narrowly managed to prevent her posting a video in which she cried hysterically while claiming she’d been diagnosed as a psychopath. She simply has no concept of the damage that she could cause for herself or others, that dodgy online stuff has a nasty habit of reappearing in the future, and so I’ve banned her from “vlogging” – yet another rule that she entirely disregards.

Sarah is aware that I’m broken, exhausted and struggling. She’s aware that computer use is a contentious issue. Yet she seems displeased when I respond through gritted teeth that while it’s great that Lily has for example made some music on the computer, she shouldn’t be playing on it unless she’s done her homework and her chores. She sends Lily out of the room and essentially tells me off, albeit couched in friendly therapist speak, for not managing to be enthusiastic about Lily’s computer use. That I’m too critical, I’m not affectionate enough, that she has a duty of care towards Lily and needs to ensure Lily is not subjected to emotional harm. Really? I think, Where the hell where you when Simon was subjecting the three of us to severe emotional and psychological abuse? How come all the evidence I’ve gathered, including the audio recording that Lily made of him being hugely abusive and attempting to alienate them from me has been entirely ignored by the authorities? Seriously, you’re going to insinuate that I’m being emotionally abusive because I can’t fake a happy face about Lily breaking the computer rules on a daily basis? Sarah goes on to point out that last week’s session was about addressing my needs and we’re now getting support from Early Help. Um – do you mean the session where I was kept waiting for over half an hour, feeling worthless because I’m evidently not important enough for anyone to speak to, and triggered because that’s the kind of thing Simon used to do? Also no – I’ve had a referral to Early Help. I’ve not had any actual help yet. So basically, nothing has changed since we first walked in to the clinic a month ago, yet Sarah is acting as if I’ve now had all the support in the world and the issue is that I’m just not patient and positive enough around Lily. Sarah also appears to have forgotten that she brokered a deal with Lily about her computer use during the last session, one which Lily has entirely disregarded; evidently Sarah is not going to hold Lily accountable for this, but rather is reinforcing Lily’s poor behavioural choices, making me look like the Bad Guy for insisting that Lily follows the rules.

Lily was referred by the pastoral team at her school as an emergency case. At the time she’d punched other kids at school, was acting aggressively and threatening members of staff, and was disruptive in class, claiming she could see people who weren’t there, or demons climbing up the walls. She had been self harming, and her behaviour was becoming more and more bizarre as she imitated characters from her favourite anime, literally living out her day as a fictional character. Also – and the part which seems to be continually overlooked – she had threatened me, firstly with a heavy stone pestle and then with the kitchen knife. What I find most disturbing – as well as the knife incident – is that she was deliberately faking having psychotic episodes. She didn’t really see people or demons, she was acting out. The self harm was carefully controlled, scratching rather than cutting, and displayed to others at school. In addition, the only time she ever shows me affection is when she wants something. Every time. If she starts cuddling up to me, I can feel myself getting tense because I know she’s about to demand something from me. Sarah was emphasising that Lily was a child with diagnoses, but then again she had Lily down as being 14. Lily will be 16 in three months. If she continues punching people and being aggressive, she’ll get arrested. If she continues acting out like a crazy person, she’ll be sectioned. It doesn’t matter to the police that she’s deeply immature or autistic, if she’s behaving like a menace to the public then they’ll take action against her – and as she will continue to be aggressive towards the arresting officer, the situation will spiral out of control. I suppose I’m lucky that we don’t have guns. In America, Lily would have been singled out as a potential school shooter. I’m not trying to make some kind of sick joke – she would literally be on the “concern” list, invited in for regular chats with the school counsellor as her behaviour has been so extreme.

If Lily was my partner, people would be urging me to leave her; the pathological lying, the aggression, the total lack of regard for other people. But she’s my child, therefore I’m expected to not even complain. The reality is that I need respite, it’s a lot easier to manage her behaviour if I’ve been able to take a break from caring for her 24/7. When you’re having to fight the same battles day in day out – over issues as simple as Lily cleaning her teeth, or taking a bath, never mind homework and computer use, it becomes exhausting and demoralising. When you’re dealing with aggression day in day out, it wears you down and erodes your self confidence. If I got a job at a specialist school for autistic children, I’d be given training and support. As a parent it’s a case of just getting on with it – or the offer of yet another parenting course in which you’re told to be positive and enthusiastic, or even to just give the kid exactly what they want to keep them quiet. Broke the computer again? Oh well, let’s buy you another one. I wish I was joking, but that’s what the advice on Challenging Behaviour workshops boils down to. Nobody ever works one-to-one with your child on a sustainable therapeutic basis; instead the onus is always put back on the parent; untrained, exhausted and demoralised, to somehow wave a magic wand and make it all better.

We should have had a referral to CYPS about seven years ago. It should have been automatic when Lily was referred to the Tavistock with gender dysphoria, but we were knocked back. We’ve had one six week block of art therapy for her about five years ago when the service was still CAMHS and Lily was newly diagnosed with ADHD, but several rebuttals since then. I’m aware that children’s services are woefully overstretched and underfunded, but I refuse to say that we’re “lucky” to have had the limited support that we’ve had. It’s a disgrace. Even before she’d met Lily, Sarah was hinting that perhaps talking therapy might not be appropriate and seeming very much like she wanted to take us off her case list before she’d even started, the easiest way of clearing out the waiting list. The trouble is there is nothing else. If CYPS don’t help us, it’s the end of the road, unless I pay for private therapy. Yet it’s clear that at the moment, I need therapy myself – if I go under, both of the kids go under, and I can’t pay for all of us at once. We might only get 8 sessions with CYPS, and Sarah is going to be moving away halfway through those, leaving Lily with someone else – my next fear is that we’ll get no further than essentially having two rounds of getting to know you sessions with two different therapists, and no actual progress will be made. In the meantime I’ve now had four occasions of leaving the CYPS clinic feeling utterly demoralised to the point of suicide. I’ve had to sit on a park bench, sobbing in public until I could calm down enough to drive us home, knowing that if I had a knife in my bag I’d be using it on my wrists. Each time, I’m left fighting to survive, building myself back up before trying to repair the additional damage that has been done to the relationship between Lily and me.

A recent documentary showed how nationwide CYPS is underfunded and overstretched, and that children and young people are repeatedly being turned away while their problems grow worse. As a parent it’s heartbreaking and terrifying to watch your child’s condition worsen week by week while not being able to get them the help they need – unless of course you can afford to pay for private treatment. Frustration and anger build as GPs refuse to even attempt to refer you to further services. Again and again you’re told that there’s nothing they can do, or that your child’s problems aren’t serious enough, while you watch your child slipping further down, further away, losing them a bit more each day. Your stress and anxiety build, until it reaches the point where you need help too, and your own ability to cope and support them diminishes. And because the “support,” if and when it arrives, has been so hard-won, you close your eyes and pretend that it’s fine, it’s making a difference, even when it’s not. You don’t dare complain for fear of losing everything. I’ve met countless families where this is the nightmare reality. Our kids are stressed and sick and left to get on with it. Our autistic kids are entirely ignored and unsupported. Meanwhile no one is taxing the rich or the corporations and the luxury goods market is at an all time high. A local aristocrat featured in a documentary about the wealth divide, shrugging her shoulders that “poor” people were just jealous of her lifestyle and needed to work harder (she herself had married into a titled family.) No. The system is stacked against us, social mobility becoming increasingly harder in a world of Zero Hours contracts, huge university fees, student loans, eye-wateringly expensive property prices and precious little job security, not to mention the nightmare that Universal Credit has been. But we’re not jealous of Cartier watches and polo ponies. We’re angry that our kids are being left to rot so that the rich can feel even richer.

Foraging

Foraging apples, blackberries, elderberries, rosehips

Buoyed up by intention, I grabbed my basket and took a quick detour on the way to drop Ivy off at a sleepover. Down the road from The House in the Sky was a small park with a few large elder shrubs that I relied on when foraging elderflowers and berries, so we headed to it. Bittersweet feelings and memories bubbled up with each step, so many times we’d traced that path on walks or trips to the playground – this was our old stamping ground, no longer ours. As if to underline that, the bushes had been chopped down to the ground earlier this year, young green stems growing out of thick stubby trunks, but no hope of any berries. We took a different route back to the car, finding another elder growing up next to a garage – most of the berries were already shrivelled, but between us we managed to pick a handful. Evidently the plans I’d made for cooking up some elderberry cordial to see us through Winter’s coughs and colds, plus a bottle of elderberry liqueur, would not be happening this year. That’s the downfall of foraging; if you get out there too late, it’s gone. It’s frustrating as I know how effective elderberries can be in staving off colds – one year I made a flask full of hot elderberry cordial to take to a work event with me, needing to be at my best when I could feel myself coming down with a bad cold – after a day of sipping cup after cup, my symptoms vanished. Having been stuck with this current cold for almost two months, I could do with a few good cups of it now!

We headed over to the canal in the hope of finding an elder cloaked in shade and brimming with berries, but no such luck. Instead a box of apples on a cottage wall, free to take. We took a few, and found some late blackberries further up the path as well as a rose that was bursting with hips. Rose hips are also full of vitamin C and good medicine for Winter, I remember taking rosehip syrup as a child, bought at the local chemist rather than foraged. Once upon a time they would have been a vital source of vitamins, given that the UK didn’t have the climate for citrus fruit; Nature provides fruit and berries in the Autumn, allowing us to take in the vitamins we need to build ourselves up for Winter, while Spring brings the tonic herbs for detoxing and enlivening. The difficulty with rosehips is that the fine hairs surrounding the seeds are an irritant and used to be used in itching powder – not something that you want to ingest. As it looks like this year I’m going to be relying on rosehips instead of elderberries, I’ll have to do a bit of research into the most efficient/easy ways of using them. Over the last few years I’ve been trying to learn about herbalism and foraging and know how empowering it feels to make your own medicine; there’s a belief among herbalists that medicine you prepare yourself is the most effective. Similarly, foodstuffs that you plant and grow will become tailored to your needs, a medicine in itself. I’m in need of good medicine, of building myself up and empowering myself to move forward.

So, with only a handful of elderberries to play with, I did what I could, simmering them up in a bit of boiling water with a good dollop of raw honey and a smashed cardamom pod (cloves are usually recommended but I’d run out.) Pouring it into a mug, I added a healthy splash of last year’s rose brandy to turn it into my own take on a hot toddy. It was delicious, plus I’d enjoyed fresh air, sunshine and a walk with Ivy in order to gather it, all of which are part of the medicine.

I’ve found a recipe for rosehip syrup at www.laundryetc.co.uk and a rosehip liqueur at www.craftinvaders.co.uk, I’ll let you know how it goes!

On World Mental Health Day

Crashing, over and over. Fighting to pick myself up, keep going, trying to make things better. Getting knocked back over again, each time the fall coming harder, the pain deeper, the resilience less. A good weekend is followed by a clash with Lily’s therapist, who alarmingly manages to actually make things worse. Over the past two months, this woman has left me feeling suicidal no less than four times, steamrollering me with her procedures and rules and now forcing me into the role of Bad Cop with Lily while she gets to play the Good Fairy; not even the Good Cop. Another post for another time, but I was left curled up on my bed, sobbing, unable to function. Not able to leave the house to drive into town to pick the kids up off the school bus, not able to cook dinner, locking myself in my room because I couldn’t face dealing with the kids and I didn’t want them to see me in that state either. Literally wanting to die and feeling trapped because suicide isn’t an option when you’re a single parent. Fighting the urge to gulp down most of a bottle of whisky as the next best option. Discovering a whole new level below rock bottom, one in which suicidal is something to aim for, something better than you’re currently feeling. There is nothing of me left, I died a long time ago. This empty shell should have crumbled into dust, but is forced to keep moving so that the kids have food, clothes and a ride to school. The small voice in my head becoming a scream I can’t go on like this any more, day after day after day I can’t go on, but with no way of making it stop.

Casual plans had been put in place to head north last weekend to visit my parents and see the final outing of Royal de Luxe’s giants in Liverpool. Exhausted, I realised there was no way I could drive 150 miles on Friday evening after school, spend a hectic two days giant-watching and then drive 150 miles home again on Sunday evening. I figured we’d head up on Thursday evening, then by Wednesday night, broken, realised that it was still too much to manage. I wasn’t coping, was barely functioning. So we took Thursday off school as well, packed a bag each and set out on the journey North, having left an early message on the school’s answering machine that Ivy and Lily were both ill. In the end, we took not only the Thursday and Friday but also the Monday off school, knowing that after a full-on day watching the finale in a massive crowd, I was too tired to drive home safely (due to roadworks as the motorways are upgraded, the three hour journey takes five hours or more.) Three illicit days off school, two struggling kids, one mother who was an emotional wreck. I told school that the kids were ill, intending to use the excuse of food poisoning if questioned further, developing this into full blown Noro virus if pushed – knowing that school were unlikely to want us back until fully recovered if this were the case. Because what am I supposed to say? Sorry, I’m feeling suicidal so my kids aren’t coming in for the next few days as I need to be with my family, I don’t feel safe on my own.

To Liverpool then, for 3 days of Giant-watching. Trains, buses, huge crowds. Wishing that my Dad was more inclined to take tea-and-cake breaks, or that chairs had been provided along the route. No matter though. The spectacle was enough, the magic of a mass of people caught up in a game of make-believe. I’d seen pictures of the Diver and Little Girl from years before and wished I’d been able to see it then. This time around, I was determined that we’d catch it – and now having discovered that this is the last outing of the Giants, I’m so glad that we did. It’s yet another example of an extra-curricular activity that the kids will remember for the rest of their lives, whereas it’s unlikely they’d remember what they did in school that day. We were all captivated as the huge puppets moved, walked, and danced along the streets, while red frockcoat-wearing Lilliputians dangled from ropes, climbed alarmingly tall frameworks, pulled, hauled and best of all hurled themselves from moving trucks to make the giants move, all to the music blasting out of speakers and the cheers of the crowd.

Having worked in theatre, I’m well-versed in criticism, in development during which an idea is thrashed about and re-worked to the point where it no longer resembles itself, of too many voices demanding that the piece needs to be more this, less that, must say a different message… and yet I’ve known that often the audience doesn’t make the same demands. Or at least the audience – if it were composed of ordinary people rather than the theatre in-crowd – isn’t necessarily making the same demands as those within the industry claiming to speak on their behalf. That sometimes people want to be heard, want to see their lives reflected back to them in a way that gives them grace and dignity, and above all, hope. Most people are happy with a simple story told well rather than a piece that defies convention or experiments with form and style. With what we saw of the giants this time around, I couldn’t pick up on any notion of a story that was unfolding in front of me. It didn’t matter though. What we watched was a celebration, a spectacle. Hundreds of people had poured countless hours of effort into planning, building, rehearsing, and now performing- from the frock-coated Lilliputians tasked with operating the giant puppets, to the volunteers walking alongside them to maintain a safety cordon, to the transport workers ensuring that people could travel there and back as swiftly as possible, to the guys sweeping up the litter afterwards – all ultimately tasked with a single aim; to bring delight. I could infer any meaning I wanted about Liverpool’s Dream, from the history of migration from the city, people travelling to the New World chasing their dreams of a better life, to the tragic history of slavery and a city built on the backs of the exploited. Perhaps it sounds crass to say it didn’t matter. What mattered was bringing people together to watch it, to share in a communal experience of childlike wonder, of awe, of joy.

I imagine that there’s people I’ve worked with previously who would turn their noses up at the naivety of the whole thing, who would claim it had nothing to offer artistically, that it was mere spectacle. I think perhaps they don’t understand the meaning of the word spectacle – like watching a grand fireworks display which may not have anything to say about white working class reaction to Brexit, but which fills you with a delicious joy for the wonders of human existence. This is something we need more of, these moments of connection, of awe, of delight. Of hope, rather than yet another young woman brutally murdered in yet another crime drama, or witless reality show, or on-point, right-on stylistically innovative but depressing as fuck piece of new writing. Under Tory cuts, arts budgets have been slashed nationwide – it’s hard to justify spending on the arts when there’s no money for meals on wheels or road maintenance. Yet Royal de Luxe have been instrumental in regenerating the city of Nantes, their home base, not only culturally but economically. Liverpool is one of the few cities that insists on investing in the arts, the number of visitors last weekend proving that it makes economic sense. The Golden Age of cinema occurred alongside the Great Depression. Art Saves, as the T-shirt has it; financially, emotionally, intellectually and also spiritually. When you run out of hope, there’s nothing left to live for. I had reached that point last week. And although the weekend was tiring due to the long hours of standing, waiting and walking, it left me feeling renewed and refreshed in a way that I haven’t felt for years. The Giants ultimately brought me the gift I most needed; hope.

Mary Poppins Syndrome

I got sick. Again. This time around it was supposedly just a cold, picked up from my Mum while we were visiting. But while Mum and the kids were under the weather for a few days, I’ve been ill for over a month with no sign of improvement. It’s a measure of how run down I am, I suppose. There simply aren’t any reserves left to fight with. So; long blog break.

In the last couple of weeks we’ve started our appointments with CYPS. So far Lily’s psychologist seems more concerned about me than Lily – at least, there’s the recognition that I’m too exhausted to start implementing new domestic routines to help with Lily’s behaviour. I’ve more than a sneaking suspicion that the Psych believes that everything will be fine if only I could be a bit more patient with Lily, and that a marvellous transformation will occur if I’m able to face every situation with calmness and positivity. There should be a law stating that no one can make that kind of judgement until they’ve lived with Lily for at least a week, and then multiply their stress by a total of fifteen years. Like yesterday, when the kids had agreed to make their own way to the school bus stop so that I could have a lie in, I then had to intervene over the phone as Lily was refusing to give Ivy her spare bus ticket – Ivy was crying, thinking she’d be left at the bus stop with no way to get to school and yes, Lily was quite happy for that to be the outcome. It wasn’t even 7.30 am, so goodbye lie-in and hello more stress. Still at least the Psych realised that I’m traumatised from the abuse during the divorce, and that the day to day demands that I’m facing are just too much to deal with. When I ran through the stresses I was facing, the psychologist looked at me in horror “But no one could cope with all that,” she told me.

Yes, I know, I wanted to scream. Here I am, not coping. There’s talk of what support will be put into place, referral to this and that, but I know better than to hold my breath. Too many times we’ve been promised support and none has arrived, so I’ll believe it when I see it. Either the support doesn’t exist, has sadly just been de-funded, the people delivering it are too flaky to make it consistent and sustainable, or the support on offer isn’t the support you actually need. Frankly, I want someone to look after the kids for a week while I get sent on an all-inclusive holiday – that’s the kind of rest I need. Or for someone to come round and cook dinner, wash up and hoover for a couple of weeks. Or drive the kids to school and back for me. Something tells me that these options won’t be included in the support package. When you’re this burned out, what you want is for someone to say Honey, go to bed. I got this.

Being so ill and drained all the time is incredibly frustrating. The pallets I’ve been collecting for months are laying around in the garden, ready to be turned into a shed – if only I had the energy to tackle it. There are plants and bulbs waiting to go into the ground. The decking attached to the garden cabin has rotted, because whoever built it didn’t think to put gutters on it, so that all needs redoing – as well as the roof finishing off properly (People, do not half-tile an already felted roof. Tile it all or don’t bother.) I keep forgetting to tackle the jobs on my list, such as getting home insurance quotes before it automatically renews, calling one lot of builders to see if they’re booked in to fix my shower, and calling the other builder to see about replacing the rotting doors. And oh – the dishes, the endless stack of washing up piling up in the kitchen. So I’m flunking at all the stuff that needs doing, never mind the additional stuff that I want to do on the house and garden. Right now, trying to make sure the kids get to school, we have food in the house and clean plates to eat it off is pretty much all that I’m managing. It sucks.

It sucks doubly because the kids are getting older. Which means two things; one, they should be old enough to help and take responsibility for themselves instead of me having to do everything for them. Two, they won’t be kids for much longer. And there’s the heartbreaking reality – I want them to be able to look back on their childhoods and remember the good times, not the living with an irritable, burned-out exhausted mother in a cluttered home where everything needs fixing. It’s like the bulbs for the garden – if they don’t get planted now, they won’t bloom in Spring. It’s too late. If I don’t start building the shed, the wood I’ve gathered will start to rot. If I can’t somehow pull together our lives and our home into something more harmonious, the kids will have grown up and left. As much as I want to heal and go gently on myself, there’s a timeline here. I can’t press a magical pause button so that the world will wait until I’ve caught up.

It’s Mary Poppins Syndrome, the desire to click my fingers and have everything fall nicely into place, preferably with the aid of a magical helper. Living – the real life we should be living – is deferred until the future when everything is in order. I have the firm belief that if I could just catch up with myself, get to a place where the house is in order, then life will begin to run smoothly and everything will be less overwhelming. I’ll be on top of things, instead of constantly skidding down the avalanche of chores and responsibilities as they pile up on top of me. No doubt life would feel more pleasant if I lived in a home that was always Instagram-ready, but I have no idea of how I’d reach that mystical stage without Ms Poppins’ intervention. The inbox is never empty though – even if by some miracle the house was “done,” it wouldn’t stay that way for long. Sustaining it requires energy, and that’s exactly what I’m lacking.

Clearly my healing and recovery needs to include my physical wellbeing and it’s fast becoming a priority. Doubtless the physical is also affected by the emotional/psychological, and vice versa; it’s hard to be upbeat if you’re constantly ill and exhausted, and stress/trauma will likely create ill health. Healing needs to take place across all areas, and apparently at the same time. So tomorrow I’m heading out to forage some elderberries, if any are still around, and maybe some rosehips too to make an immune-boosting syrup, on top of the supplements that I’ve begun taking. Time too to think about therapy, to start looking for help rather than struggling on alone, to make plans for recovery rather than waiting for Mary Poppins.

Spinal Tap and the Art of Survival

Another Spinal Tap week. You know the kind, when every time you manage to tweak your personal stress dial down to maybe a 6 or 7 (with autism in the house, it will never be below 5 unless several of us are unconscious), the Universe decides to crank it up to 11. So just as I was trying to build some order into our days, organising days out, insisting on chores and that Lily did some studying… a friend was hospitalised for almost a week. She has no family and is a single mother, which made her heavily dependent on friends to bring in changes of clothes, wash laundry as needed, bring her son in to see her. Most – almost all – of this fell to me, as it seemed very few were stepping up to help. It’s not possible to say NO to someone who is in hospital alone, scared and desperate, at least not for me. So my two have been left to their own devices – literally, computers and phones – while I’ve been driving to and from the hospital, dashing into the supermarket, collecting her son, cooking and houseworking, and still trying to squeeze in a couple of trips and activities for the summer holidays, all the time knowing that this wasn’t sustainable. Thankfully, as I write this, she’s now been released, but will still need a considerable amount of help at home; her home is half a mile away though and not fifteen miles, which makes it easier.

Several things emerge from all this. Firstly a documentary by Paul O’Grady about the working classes that I caught during the week in which he suggested that being working class was an attitude and set of values – the unspoken implication being that working class people had a stronger moral ethic about looking after each other. It had to be that way, helping each other out in times of illness and hardship, creating a web of kindness and loyalty that was the earliest version of the Welfare State. You helped each other, because you might be next in need. You helped each other, because you were up close with each other’s suffering, and one family going under could be any family going under. I’ve heard it argued that going wayyy back in history, the tribe’s hunters would share out the meat they’d caught – it wasn’t exactly easy to hoard it, pre-refrigeration. Stockpiling it or demanding that others paid a high price for it (pre-currency) just wasn’t feasible. Sharing it was not only generous, it boosted your social value to the tribe and created a debt of gratitude. If the hunter was injured or ill, it was then more likely that they would be looked after by the others. The anarchist creed; from each according to their ability, to each according to their need. Until relatively recently I’ve always believed that most people acted in this way, now I’m not so sure; a lot of people seem to be walking around wearing the attitudinal equivalent of Melania Trump’s I Really Don’t Care jacket. So; care. Help. Be kind. It’s revolutionary.

Second – thank God for the NHS. I’m trying to avoid politics on this blog, but it’s not as if politics are separate from real life. Things that our grandparents and older generations fought for are under attack again, as chunks of the NHS are sold off to private companies, workers’ rights are eroded through zero hours contracts and enforced “self-employment” for firms such as Uber, meaning that people lose the right to holidays, sick pay, pensions etc. Again, I thought that those battles had been won on the understanding that it was right and necessary to pay workers fairly, give them enough time off, look after them when they’re sick… but no, there are still too many bosses and CEOs who really Really Don’t Care and are more than willing to exploit others for wealth. I’m in despair at where our society is heading and that the fight – basically the fight to get everyone to treat each other with respect and fairness – is neverending. But in the meantime there’s a 10 year old boy who still has a mother, thanks to the NHS.

Third – if it were me that was ill, I’d be screwed. I don’t have any back up, no one to look after the kids, drive them to school etc. I really don’t know what I’d do and it’s terrifying. I will just have to add it to the list of things I’m not allowed to think about.

Fourth – I can’t change the circumstances. I can’t magic good health for my friend, a house with a parking space for me, or take away Lily’s epilepsy or ADHD. So it’s going to have to come down to changing my attitude – grrr, my hackles are up already at the thought of it – and developing better coping strategies. I’ve been complaining too much, which seems fair given the stupid amount of things I’m having to deal with, but which doesn’t actually help any. This creating a life worth living isn’t easy, particularly when the pressure keeps getting turned up, but I’m so aware of how my days have become about surviving rather than thriving, and wanting to change that. Better support systems are required – and let’s face it, we’re talking self-support here – somehow finding habits and actions that build positivity and peace of mind. I also need more downtime and mental space, particularly if I’m going to seriously start writing again; I can squeeze in the time, but my brain is too frazzled to do anything with it. Which makes it sound like I need to take up meditation. Bother. Perhaps I can transmute this into more gardening instead?

Fifth – I’ve been determined to keep up with my newfound exercise. I refuse to use the word regime. Still fitting in an early morning swim, a yoga class, a Pilates class before heading off to hospital or the To Do list. Before now I’ve had gym memberships that went entirely to waste – exercising was something I should do rather than wanted to do, and working out felt like punishment. Now, I’m treating it as me-time and approaching it gently, making it far more sustainable. I’ve still got absolutely no desire to head into the proper gym and attack the treadmill or cross-trainer, and so I’m not going to beat myself up about it. I might be the youngest in my exercise classes by a good 20 years, but hey – it’s working. Exercise is becoming my support rather than a bugbear, which is a lovely, positive shift. Along with intermittent fasting and a general reduction in snacking and comfort eating, I’ve been able to lose almost a stone over the past month. I guess this ties in with the previous point, creating support systems and positivity. Finally, I’m seeing some kind of recovery in action. Now I just need to expand that into the rest of my life…